Messages in a Bottle #9: The Archivist

This CW is so important it should be in neon flashing lights. This is a serious post. Serious like: mentions of 9th Circle of Hell current systemic abuse, mentions of the same kind of systemic abuse on another blog, and mentions of past suicidal feelings and coercive control. I really meant it when I said the lights were off this month, so please please be careful when reading this blog post. There is no date on this “past” post because it’s not truly a post written in the past. It’s a memory, from a time when I would never have written anything down, that has been bothering me. I think I need to write to exorcize that old ghost and thus fight my new demons more effectively. Be safe.

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Procrasti-Not-Us

Working from home
Image: Brain says to heart, “Now that we work from home, self-discipline is absolutely essential.” Heart, playing video games, replies, “Speak for yourself, dork.” Link to original image here

Did you know that the term procrastination comes almost directly from the Latin procrastinatus?

This is relevant because I have a new blog page on my main site that does not have a Latin title. This pains my Partner deeply. I think it pains my Partner almost as much as typing pains the hands of someone with Ehlers-Danlos!

My Partner pointed out recently that the saga of the 9th Circle of Hell has probably become so complex that any potential new readers will have a hard time figuring out what the heck I’m talking about on a weekly basis. (The bully-in-my-brain, of course, immediately added: “even more so than they would normally have difficulty just in understanding the ramblings of someone with ADHD with pronounced hyperactivity alone.” Thanks for that, brain.) I replied that I actually take great pains to try and link at least the most proximally explanatory blog posts, so readers can catch up if they want.

He then pointed out that that effort probably costs me more in hand cramps trying to back-link enough blog posts each time I write a new one to make my story make sense to new readers – and to those of my readers with brain fog in general – than it would to just maintain a dedicated page. Because he is sensible – and my hands really could use the rest – I followed his advice.

I created a Glossary of Terms this weekend. It should contain all the key descriptions needed to understand my rather topsy-turvy life. My Partner desperately wanted me to call it the Dramatis Personae page – because Latin is awesome – but it turns out that I write a lot more about places than people, with the possible exception of him. I claim it’s because I respect the privacy of others whenever possible. It might also just be that I am socially anxious and don’t have a lot of close in-person friendships…

Either way, I couldn’t justify the Latin page title. And, the effort to create that Glossary of Terms seems to have sapped my creativity to write another blog post this week. I’ve been procrastinating long enough that I now concede that writing a blog post telling readers to read my not-a-blog-post will probably be my only post this week! But, that confession at least does allow me to honor my own and my Partner’s creative styles and kill two birds with one Latin pun title. (I hope my Partner is pleased.)

I think my brain has struggled to write another post this week because it thinks it already has written one. It turns out there are enough “Easter Eggs” in the Glossary of terms – including how I got the pseudonym Lavender, an introduction to the not-horrible therapist whom I keep claiming I will write something about someday, a new Where’s Whoopsie, and even a link to the very first piece on mental illness that I technically ever wrote – to maybe back-justify that I even truly did kind of write an original post. (The aforementioned Easter-Egg article was written on a whim for the same reason I started my blog. It technically was posted on another blog two weeks after I started my own, but I wrote it first and submitting it probably also helped inspire this blog. But, I – in true ADHD fashion – kind of forgot that it existed at all or that at one point I was open to maybe trying to guest post on other blogs eventually. Oh, well. My life is too complicated to need anymore rejection therapy right now.)

Have a look at my Glossary of Terms and hopefully learn something new about me. I’ll write a real post next week, I promise! (Though, at least on the plus side I’ve actually managed to be more productive working from home. Not having to see my bully-of-a-boss on a daily basis at least reduces the amount of time I spend frozen in panic unable to even start a project for fear of him already despising it.)

Improv #11: I’m Mrs. Bright Blogs

*Knock knock*

“Who’s there?”

“The Bright Side”

“The Bright Side Who?”

“The Bright Side Who Doesn’t Actually Exist”

“Oh. Then I guess this is just another dissociative conversation with the bully-in-my-brain, then?”

“You catch on not quickly at all, don’t you? Also, your joke sucks.”

I’m fairly sure the first rule of building a blog audience is “own your domain name so you can engage in SEO and promote yourself across social media.” I failed that rule the moment I set up my account because I was too afraid to pay for an anonymous blog with a non-anonymous credit card. I also do not have the spoons to maintain more than one social media site, period.

I maintain a free site even though my lack of spoons has gradually led me to dial back on the other paranoid hoops I used to jump through to maintain anonymity. Part of my expression of a PTSD sense of foreshortened future is a fear that, if I did dare to make that all-of-$36-dollar annual investment in a domain name, I’d immediately go broke. I would be inviting the wrong kind of irony magnet. Then, my audience accustomed to something simple like “lavenderandlevity.com” would all abandon me as soon as continuing to follow me required the modicum of effort to bookmark “lavenderandlevity.wordpress.com” again. If you follow me while I use the free version, I suppose you’ll probably follow me on a paid version. But, would those who would only follow a paid version ever bother to reverse course? Do I really even want followers for whom I have to write witty, engaging content all the time? C-PTSD says just stick with free: I’ll never have to fear inevitable future rejection from potential future financial disaster. C-PTSD is dark.

Which sucks because…

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Where Would the NHS Rank Trauma on the Pain Scale?

Hi everyone,

First, I want to say thank you to everyone who talked me through the past two days. I made it out of that Sheraton break room eventually, and I did manage to give my presentation the next day. I know some people asked what I was presenting on, but in the world of research – startup, policy, or academia – your research is probably the most tell-tale marker of your identity. If I told you about my presentation, I’d be telling you who I was, who my bully-of-a-boss was, and – by extension – who my sibling and all the various systemic abusers in the 9th Circle of Hell were all in one easy Google search. I’m sorry, that doesn’t feel safe. Hopefully, the grad students and professional researchers among you understand.

The bedbug place lost its license, albeit not for the reasons I originally expected. I still don’t know the reason. They also appear to have chosen not to undergo the appeals process they – as providers – are entitled to in the 9th Circle of Hell. (The 9th Circle of Hell, of course, has no corresponding client appeals process or any independent way to determine the outcomes of license inspections. Yes, this is technically a violation of federal law, for those few of you in the know who are wondering, but it has been ignored by the feds for at least two years.) They packed up, fired their employees, and for hours it seemed like they were prepared to dump several facilities worth of patients on the street.

Continue reading “Where Would the NHS Rank Trauma on the Pain Scale?”

Tools of the Trade Show

CW: Panic attacks in progress and the reasons for them.

So, this is not the type of post I normally write. I’m not even sure it qualifies as a true post. If this were Facebook, I’d be vaguebooking to the point of parody. However, I will explain more later, when I feel able to and when I know more. So, I ask you all to stick with me for the moment.

I’m currently sitting in the staff break area at a hotel. I’m on my second week back to work and attending a conference.

And – because my life is a perfect shit storm – I just got a call about the 9th Circle of Hell. The situation at the bedbug place didn’t resolve after all, despite what it seemed. And – because I am apparently cursed – it fell apart even more while I was traveling, instead of safely working remotely where I could at least claim the dignity of falling apart in private.

I’m supposed to be presenting tomorrow, damn it! Yet, before that I have to somehow get from hiding with the cup of tea handed to me by a kind hotel staff member, trying to keep myself from completely shutting down by writing incoherent blog posts, to having a voice strong enough to give a presentation on data.

I need some serious help to get there. The chasm between those two states of Lavender existence seems insurmountable at the moment. And, the bully-in-my-brain, using the time-worn tool of the trade of the panic spiral, thinks I’ll crash and burn if I try to do anything about either the presentation or the 9th Circle of Hell.

Could you all just tell me that:

1) You believe me that I don’t want all the bad things that have happened this year to keep happening. You believe me that if I knew how to escape this systemic trap, I would. (I fear my colleagues probably won’t understand if this situation somehow impacts my ability to present tomorrow. I’m not sure I can handle them not.)

and

2) You believe that I can somehow pull myself together and make it through this. I can’t reach my Partner. I’ve called him multiple times. I’m in a city I don’t know. I’m here with coworkers who will likely follow my boss’s lead on how to treat personal situations to protect themselves from his wrath even though he himself isn’t onsite. I’m feeling like I just can’t anymore. It’s too much. I’m overwhelmed and frozen and probably way more dissociated than I should safely be in public. The idea of leaving this breakroom seems thoroughly impossible right now, though objectively I know that three hours ago I was feeling pretty competent and in control, and technically I’m still the same Lavender who felt that way not so long ago.

I need some serious “buffering the effects of trauma through witnessing and not shaming” right now, if it’s not too much to ask…

Triggersplaining

TW: Talking potentially triggeringly about someone else talking definitively triggeringly about the Kavanaugh hearings.

I talk very loudly at times. It’s an occupational hazard of ADHD. In hindsight, I’m sure that I have said things about things that have happened in my life loudly enough into cell phones in various public places and on various forms of public transportation – possibly even this summer – such that my coastal co-commuters have formed firm impressions that the 9th Circle of Hell is not the sort of place they should put on their tourism bucket list. On a few occasions, they may even have had to awkwardly share a train home with their crying stranger.

I’m thoroughly oblivious to the volume of my voice, especially when I’m upset. To the best of my knowledge, though, those unwitting unease-droppers only learn that the 9th Circle of Hell is a terrible, horrible, no good, very bad place. They don’t know the details of why it is so horrible, both for my safety and for theirs. I don’t share any specific details of lived traumatic events over cell phones. 1) Who would I be talking to on a cell phone that I trust that much? The only person I share those things with – besides the entire Internet, of course – is my Partner. If I’m on a train, he’s probably no more than an hour away from hearing more detail than he ever wished to have seared into his brain about the most recent horrible thing inflicted by that place for the next three hours, so a tearful warning to brace himself is probably sufficient for the phone call. 2) It’s hard to be anonymous when I yell a lot. ADHD. It’s not just for interrupting. It’s for interrupting obnoxiously enough that the whole room takes notice. 3) Most importantly, I may be fairly oblivious, but I have learned what triggers are and why overly detailed accounts of trauma shared in unexpected spaces might inflict on others the kinds of PTSD episodes my boss so charmingly calls the marker of a “difficult working style.” I’m still uncertain if PTSD or some other spoon-sucking diagnosis will eventually cost me my job, but taking someone else down at the same time seems like forfeiting to the 9th Circle of Hell without so much as a fight.

Given that I am generally as oblivious and audible as they come, I find it – surprising – that I still have more subconscious self-decorum then the presumably neurotypical know-it-all I shared an evening train ride home with tonight. The guy – dressed in what I presume still qualifies as generic early 20s hipster while proudly manspreading across three seats – was boasting loudly to his cell phone partner about how sensitive he was for recognizing that sexual assault survivors might be re-traumatized by what they had heard during the hearings today, how he had taken up the mantle of explaining to his less-enlightened male friends exactly how prevalent sexual assault was, how there are many reasons why women might not come forward, and how he considers himself an ally. Good on him and all –

–  except for that bit where he explained all of these things by shouting them into his cell in a train car populated enough to be carrying at least a couple of survivors, based on his own quoted statistics?! He then illustrated his point about how certain words and phrases that don’t register to men can trigger women by offering a play-by-play of the Kavanaugh hearings today in the same booming voice.

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Remote Control

WorstJob
Image: Toothbrush says “Sometimes I feel that I have the worst job in the world!” Toilet paper thinks in reply, “Ya…right!”

If a bully-of-a-boss screams in an office, and there is no Lavender around to hear it, can he still control her amygdalar fear response?

We’re about to find out.

I am now a 100% remote employee?!

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Where’s Whoopsie #14: Where’s it Hurt?

Traveling and being unwilling to bring anything I have actually invested time and effort in with me to Hell means I haven’t posted a Where’s Whoopsie since July! I suppose I could have posted some of my decidedly not-safe-for-work swear word drawings that I relied upon instead of geometric patterns to express my feelings during my time in the 9th Circle of Hell, but even I don’t care to see them, though swearing out loud feels like a great way of reminding myself I’m not in that place anymore. I’m fairly confident some of those swear words leaked into my blog posts anyway over the past few months.

However, I feel like posting something just because I need to mentally distract myself, and typing hurts physically even if it might help mentally. Thus, I’m using the fall back of pretty pictures to make up for a decidedly lackluster pain-fogged blog post. Something appears to be going “around,” and proximity to sick people has resulted in the inevitable acute illness coupled with massive amounts of all-over pain. I would dearly love to understand how bacteria and/or viruses exacerbate joint problems caused by defects in collagen, but they certainly seem to. Acute illness seems to have triggered a truly agonizing all-over EDS joint-pain flare. I’m exhausted but on my second night of painsomnia. The next time someone compares their cold to my chronic illness, I’m going to remind them that we get all the same bugs, then have to deal with another week of our normal symptoms being on overdrive to top it off.

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Blog Awards Series #5: B is for Blog Awards

I am not saying “B is for Bedbugs,” because supposedly things are “happening” with that. The home is hiring a new exterminator to come tomorrow and – again supposedly – is going to deal with the code violations that resulted in the scary green notice. I’m not sure how much faith I have in either of these things, but there’s not much I can actively do until I’ve given them a chance to fail all on their own.

Having learned entirely too much about what to do to keep bedbugs out even before an exterminator comes by when a complex I lived in during graduate school got them – and finding the agency rather lackadaisical about learning from my lived experience – I’ll share it with you all. Food-grade diatomaceous earth lining the walls and furniture is a great way to stop bed bugs and other nasties from getting in if the neighbors have an infestation. It’s also a cheap and surprisingly effective after-care product once the exterminator does treat. I did my research as soon as I discovered my neighbors had them, bought that, and was the only person in a ten-unit apartment that didn’t get bedbugs back in the day.  I don’t think it was strictly allowed by my lease to do my own treatments, but at the time management didn’t care since it worked.

There’s no point in putting it down in my sibling’s room until the infestation is handled with entomological nukes first, but I keep hoping the agency will at least allow me to do the same after-care measures for my sibling’s room later. I’m not quite daring enough to just do them anyway as I did in grad school, because I’ve seen agencies use any technicality to boot someone, they barely wanted someone with a trauma history to begin with, and there aren’t really any other openings.

So instead B is for Blog Awards like C is for Cookie. If I have an enforced sit-on-my-hands week, I probably should get back to that “mental health sabbatical” portion of my not-FMLA. I’m hoping to do some baking. Baking too often seems incredibly overwhelming and not worth the spoons when the world is falling apart. But, I’ve always deeply enjoyed it when I can manage it. My original “balanced scorecard” included playing with inventing recipes as a thing that made me feel more like me.

Today’s other balanced scorecard questions are courtesy of Fibronacci:

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Don’t Let The Bedbugs Bite

*In the 9th Circle of Hell, bed bugs warrant a CW. Respect your mental health when reading.*

I have a standard caveat on my blog that I will change minor details or abstract timelines for the sake of maintaining anonymity. Despite that claim – sensible though it probably would be to actually do that – to my knowledge, I have only actually changed two tiny details about my life for my blog. Both have been about the specifics of what my workplace produces and to whom it markets it, which are probably sensible precautions given my bully-of-a-boss’s penchant for firing people. The 9th Circle of Hell seems to think themselves so far above the law I probably could call out the abusers by name and they’d just laugh that they were still invincible, but my boss might just be the kind to fire a person on suspicion alone because he thinks a random anonymous blog with less than 1,000 followers could possibly be about him.

I’ve not changed any details about the 9th Circle of Hell. All the crap I’ve written about it – past and present – is true. It really is that bad. In fact, if anything, what I’ve written to date on my blog remains only a sanitized version that leaves off a lot of the nitty-gritty everyday horrible things I’ve experienced dealing with that state in favor of sharing the biggest atrocities. I’ll stay anonymous forever for my own and others’ veil of pretended protection, but it turns out I can’t actually alter details of my life when talking about the 9th Circle of Hell. I can’t even always be as vague as my PTSD hypervigilance thinks would be prudent. My PTSD brain simultaneously wants to protect itself by maintaining a veil of “generic everyman-ness” to my story, yet also keeps demanding I share details that are very specific to my story. It can no longer contain all of the things that have happened within and because of that state without the refuse overflowing, and my blog seems the safest place to dump the trauma wastewater.

Continue reading “Don’t Let The Bedbugs Bite”