Procrasti-Not-Us

Working from home
Image: Brain says to heart, “Now that we work from home, self-discipline is absolutely essential.” Heart, playing video games, replies, “Speak for yourself, dork.” Link to original image here

Did you know that the term procrastination comes almost directly from the Latin procrastinatus?

This is relevant because I have a new blog page on my main site that does not have a Latin title. This pains my Partner deeply. I think it pains my Partner almost as much as typing pains the hands of someone with Ehlers-Danlos!

My Partner pointed out recently that the saga of the 9th Circle of Hell has probably become so complex that any potential new readers will have a hard time figuring out what the heck I’m talking about on a weekly basis. (The bully-in-my-brain, of course, immediately added: “even more so than they would normally have difficulty just in understanding the ramblings of someone with ADHD with pronounced hyperactivity alone.” Thanks for that, brain.) I replied that I actually take great pains to try and link at least the most proximally explanatory blog posts, so readers can catch up if they want.

He then pointed out that that effort probably costs me more in hand cramps trying to back-link enough blog posts each time I write a new one to make my story make sense to new readers – and to those of my readers with brain fog in general – than it would to just maintain a dedicated page. Because he is sensible – and my hands really could use the rest – I followed his advice.

I created a Glossary of Terms this weekend. It should contain all the key descriptions needed to understand my rather topsy-turvy life. My Partner desperately wanted me to call it the Dramatis Personae page – because Latin is awesome – but it turns out that I write a lot more about places than people, with the possible exception of him. I claim it’s because I respect the privacy of others whenever possible. It might also just be that I am socially anxious and don’t have a lot of close in-person friendships…

Either way, I couldn’t justify the Latin page title. And, the effort to create that Glossary of Terms seems to have sapped my creativity to write another blog post this week. I’ve been procrastinating long enough that I now concede that writing a blog post telling readers to read my not-a-blog-post will probably be my only post this week! But, that confession at least does allow me to honor my own and my Partner’s creative styles and kill two birds with one Latin pun title. (I hope my Partner is pleased.)

I think my brain has struggled to write another post this week because it thinks it already has written one. It turns out there are enough “Easter Eggs” in the Glossary of terms – including how I got the pseudonym Lavender, an introduction to the not-horrible therapist whom I keep claiming I will write something about someday, a new Where’s Whoopsie, and even a link to the very first piece on mental illness that I technically ever wrote – to maybe back-justify that I even truly did kind of write an original post. (The aforementioned Easter-Egg article was written on a whim for the same reason I started my blog. It technically was posted on another blog two weeks after I started my own, but I wrote it first and submitting it probably also helped inspire this blog. But, I – in true ADHD fashion – kind of forgot that it existed at all or that at one point I was open to maybe trying to guest post on other blogs eventually. Oh, well. My life is too complicated to need anymore rejection therapy right now.)

Have a look at my Glossary of Terms and hopefully learn something new about me. I’ll write a real post next week, I promise! (Though, at least on the plus side I’ve actually managed to be more productive working from home. Not having to see my bully-of-a-boss on a daily basis at least reduces the amount of time I spend frozen in panic unable to even start a project for fear of him already despising it.)

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Where Would the NHS Rank Trauma on the Pain Scale?

Hi everyone,

First, I want to say thank you to everyone who talked me through the past two days. I made it out of that Sheraton break room eventually, and I did manage to give my presentation the next day. I know some people asked what I was presenting on, but in the world of research – startup, policy, or academia – your research is probably the most tell-tale marker of your identity. If I told you about my presentation, I’d be telling you who I was, who my bully-of-a-boss was, and – by extension – who my sibling and all the various systemic abusers in the 9th Circle of Hell were all in one easy Google search. I’m sorry, that doesn’t feel safe. Hopefully, the grad students and professional researchers among you understand.

The bedbug place lost its license, albeit not for the reasons I originally expected. I still don’t know the reason. They also appear to have chosen not to undergo the appeals process they – as providers – are entitled to in the 9th Circle of Hell. (The 9th Circle of Hell, of course, has no corresponding client appeals process or any independent way to determine the outcomes of license inspections. Yes, this is technically a violation of federal law, for those few of you in the know who are wondering, but it has been ignored by the feds for at least two years.) They packed up, fired their employees, and for hours it seemed like they were prepared to dump several facilities worth of patients on the street.

Continue reading “Where Would the NHS Rank Trauma on the Pain Scale?”

Tools of the Trade Show

CW: Panic attacks in progress and the reasons for them.

So, this is not the type of post I normally write. I’m not even sure it qualifies as a true post. If this were Facebook, I’d be vaguebooking to the point of parody. However, I will explain more later, when I feel able to and when I know more. So, I ask you all to stick with me for the moment.

I’m currently sitting in the staff break area at a hotel. I’m on my second week back to work and attending a conference.

And – because my life is a perfect shit storm – I just got a call about the 9th Circle of Hell. The situation at the bedbug place didn’t resolve after all, despite what it seemed. And – because I am apparently cursed – it fell apart even more while I was traveling, instead of safely working remotely where I could at least claim the dignity of falling apart in private.

I’m supposed to be presenting tomorrow, damn it! Yet, before that I have to somehow get from hiding with the cup of tea handed to me by a kind hotel staff member, trying to keep myself from completely shutting down by writing incoherent blog posts, to having a voice strong enough to give a presentation on data.

I need some serious help to get there. The chasm between those two states of Lavender existence seems insurmountable at the moment. And, the bully-in-my-brain, using the time-worn tool of the trade of the panic spiral, thinks I’ll crash and burn if I try to do anything about either the presentation or the 9th Circle of Hell.

Could you all just tell me that:

1) You believe me that I don’t want all the bad things that have happened this year to keep happening. You believe me that if I knew how to escape this systemic trap, I would. (I fear my colleagues probably won’t understand if this situation somehow impacts my ability to present tomorrow. I’m not sure I can handle them not.)

and

2) You believe that I can somehow pull myself together and make it through this. I can’t reach my Partner. I’ve called him multiple times. I’m in a city I don’t know. I’m here with coworkers who will likely follow my boss’s lead on how to treat personal situations to protect themselves from his wrath even though he himself isn’t onsite. I’m feeling like I just can’t anymore. It’s too much. I’m overwhelmed and frozen and probably way more dissociated than I should safely be in public. The idea of leaving this breakroom seems thoroughly impossible right now, though objectively I know that three hours ago I was feeling pretty competent and in control, and technically I’m still the same Lavender who felt that way not so long ago.

I need some serious “buffering the effects of trauma through witnessing and not shaming” right now, if it’s not too much to ask…

Remote Control

WorstJob
Image: Toothbrush says “Sometimes I feel that I have the worst job in the world!” Toilet paper thinks in reply, “Ya…right!”

If a bully-of-a-boss screams in an office, and there is no Lavender around to hear it, can he still control her amygdalar fear response?

We’re about to find out.

I am now a 100% remote employee?!

Continue reading “Remote Control”

Where’s Whoopsie #14: Where’s it Hurt?

Traveling and being unwilling to bring anything I have actually invested time and effort in with me to Hell means I haven’t posted a Where’s Whoopsie since July! I suppose I could have posted some of my decidedly not-safe-for-work swear word drawings that I relied upon instead of geometric patterns to express my feelings during my time in the 9th Circle of Hell, but even I don’t care to see them, though swearing out loud feels like a great way of reminding myself I’m not in that place anymore. I’m fairly confident some of those swear words leaked into my blog posts anyway over the past few months.

However, I feel like posting something just because I need to mentally distract myself, and typing hurts physically even if it might help mentally. Thus, I’m using the fall back of pretty pictures to make up for a decidedly lackluster pain-fogged blog post. Something appears to be going “around,” and proximity to sick people has resulted in the inevitable acute illness coupled with massive amounts of all-over pain. I would dearly love to understand how bacteria and/or viruses exacerbate joint problems caused by defects in collagen, but they certainly seem to. Acute illness seems to have triggered a truly agonizing all-over EDS joint-pain flare. I’m exhausted but on my second night of painsomnia. The next time someone compares their cold to my chronic illness, I’m going to remind them that we get all the same bugs, then have to deal with another week of our normal symptoms being on overdrive to top it off.

Continue reading “Where’s Whoopsie #14: Where’s it Hurt?”

Don’t Let The Bedbugs Bite

*In the 9th Circle of Hell, bed bugs warrant a CW. Respect your mental health when reading.*

I have a standard caveat on my blog that I will change minor details or abstract timelines for the sake of maintaining anonymity. Despite that claim – sensible though it probably would be to actually do that – to my knowledge, I have only actually changed two tiny details about my life for my blog. Both have been about the specifics of what my workplace produces and to whom it markets it, which are probably sensible precautions given my bully-of-a-boss’s penchant for firing people. The 9th Circle of Hell seems to think themselves so far above the law I probably could call out the abusers by name and they’d just laugh that they were still invincible, but my boss might just be the kind to fire a person on suspicion alone because he thinks a random anonymous blog with less than 1,000 followers could possibly be about him.

I’ve not changed any details about the 9th Circle of Hell. All the crap I’ve written about it – past and present – is true. It really is that bad. In fact, if anything, what I’ve written to date on my blog remains only a sanitized version that leaves off a lot of the nitty-gritty everyday horrible things I’ve experienced dealing with that state in favor of sharing the biggest atrocities. I’ll stay anonymous forever for my own and others’ veil of pretended protection, but it turns out I can’t actually alter details of my life when talking about the 9th Circle of Hell. I can’t even always be as vague as my PTSD hypervigilance thinks would be prudent. My PTSD brain simultaneously wants to protect itself by maintaining a veil of “generic everyman-ness” to my story, yet also keeps demanding I share details that are very specific to my story. It can no longer contain all of the things that have happened within and because of that state without the refuse overflowing, and my blog seems the safest place to dump the trauma wastewater.

Continue reading “Don’t Let The Bedbugs Bite”

Blog Awards Series #3/Messages in a Bottle #7.1: 525,600 Moments of Blog Awards

Today’s Questions are courtesy of Ease the Ride. They are both the hardest questions and the easiest questions to answer of all the blog awards, because there are really only three of them, and I had previously written a blogiversary post that, in theory, should have answered all of them. It was the post I intended to post for my one-year blog anniversary. I never posted it, so now it has become a blog award. The questions are as follows:

1) Write a paragraph of something positive about yourself

2) Briefly tell the story of your blog

3) Give two pieces of advice to new bloggers.

Continue reading “Blog Awards Series #3/Messages in a Bottle #7.1: 525,600 Moments of Blog Awards”

Houston, We Have a Problem

Explaining_is_Hard

That problem is, apparently, that I sound like an astronaut communicating through a crinkly 1960s com unit from the Moon – while my space suit springs a slow leak and I rapidly lose oxygen.

Did I ever mention that social anxiety makes absolutely no sense? I may be a bit underconfident when I perform on stage, but I at least can speak in multiple sentences without choking, in either the figurative or the literal sense.

This is not the case with job interviews.

Despite the protracted visit to Hell this month, I did manage to get off a small batch of applications to potential data science positions. This is a reasonable accomplishment, as these applications, even outside of academia, are not short. There’s no simple “slightly modify your resume, change a paragraph of a cover letter” and go. Each one requires references up front, transcripts, lists of published papers, and other odds and ends to create a complete portfolio. Each one has its own specific hoops** to jump through. Some I have seen even want samples of publicly available code on GitHub! We don’t even really use resumes. It’s all C.V.s. Oh, and I’m pretty much mentally broken right now and my typical protective mental walls have been dangerously breached by all the workplace bullying and 9th Circle of Hell full-scale substantiated systemic abuse.

All of those lodestones aside, I was able to complete one stage 1 phone interview. One of the rare legitimate benefits of ADHD is that if you truly enjoy what you do – and I do, just not always the workplace culture that surrounds it – hyperfocus can be harnessed to your favor. You can, for instance, pull off reading everything a lab has published in the past five years, plus review what consulting gigs and patents have been pursued in tandem, the work of their external research partners, and even their potential security of grant and/or venture capital sources. (I’m pretty sure a big part of the systemic breakdown of the current workplace culture is ultimately funding-related self-protective offensive attacks. I’d like some indication I’d be with a more established, stable entity instead of out of the frying pan and into the fire.)

There was nothing about that organization I didn’t know, and I had really carefully thought-out answers for the standard interview questions and what my background could contribute. Those answers were even good!

I managed to answer with great content, but the rushed breathiness of someone who basically was fighting a potential panic attack the entire time. Have you ever noticed how sometimes you can’t take deep breaths to calm anxiety, even if you try? You get physically stuck in a kind of hyperventilation. If I had forced deeper breaths (I briefly experimented while on mute), I risked going into a sort of coughing/retching fit. Being somewhat rushed and breathy – but not dry heaving – seemed better.

So, that sucks. I’m pretty sure in the past I’ve sounded like I speak a mile a minute and likely talked over people (because ADHD), but I at least haven’t sounded like I exhaust myself with my talking. Now, I seem to have the “don’t overwhelm with too much content too quickly” more under control, yet I get no benefit because some form of anxiety + idiotic autonomic nervous system functioning literally starved my brain of oxygen while I spoke! Did I mention I wasn’t actually – at least so I thought – even that anxious? My anxiety over this interview was nothing compared to the traumatic meetings I’ve had recently with the 9th Circle of Hell. My answers were good. I felt confident in them. If I had managed to speak like someone breathing the air around her instead of from deep inside a malfunctioning space suit, I’d even have said I felt pretty confident I’d get a second interview. But, apparently, when giving interviews after a lifetime of Hell, the devil is still in the delivery.

Has anyone else had that experience? You actually feel confident in what you want to say, but your lungs seize up and you can barely draw the breath to say it anyway? Any tips? This is kind of a scary new expression of my anxiety. Everything about my stress responses lately have been new and scary.

** For anyone who is going to suggest that perhaps I could actually make good on my claims about using statistics for social justice by applying to an advocacy organization, I have bad news. 1) There really aren’t a lot of grass-roots mental health or chronic illness groups that employ data geeks. 2) I am, still, a data scientist not a computer engineer by training, so sys admin positions don’t quite fit. 3) The ones that do have openings seem to want you to have already worked in advocacy. I saw one that actually seemed cool, but they explicitly stated their technical staff need to be “camera ready” to give solo press conferences about findings. Because even the data staff need to be PR-savvy, I guess the socially anxious aren’t the target mental illness demographic for mental illness advocacy by default? I still like the idea, but it seems like breaking into the world of making the world a better place is surprisingly complicated?

Behind the Back Behavior

I feel betrayed. I’ve just learned for the first time about some truly “behind the back” behavior. I don’t mean anything from the 9th Circle of Hell, workplace bullying or even America’s President being a traitor – those are all sufficiently terrifying betrayals, but they are hardly newly discovered  – but rather something that has been quietly happening for years of which I’ve just become aware. Women, we’re all being badly betrayed…

By women’s clothing.

I’ve had to wear entirely too many dresses lately. Dresses are frustrating to begin with for spoonies, because they require things like making sure your legs are shaved every day, finding flat-toed shoes that look professional and cute (I do not have the ankle stability to wear heels), the ridiculousness and expense that is “dry cleaning,” inconsistent sizing between brands that make shopping take forever and fray the last ADHD nerve, having to buy special bras to wear with oddly shaped clothing styles, and sometimes wearing the modern-day torture device known as the “thong” under them.

They also all have zippers in the back. This has never phased me, but apparently only because I’m a mutant.

I finally pursued physical therapy for Ehlers-Danlos Syndrome because it seems like, if I’m going to have to be on unpaid not-FMLA leave wearing traitorous dresses to traitorous meetings in the 9th Circle of Hell, I should also actually invest some energy into learning how not to dislocate my elbows or fall over because my ankle suddenly decides it needed to pop out orthogonally to my leg while I do so.

It took months to find a physical therapist who actually knows about EDS and who accepts my insurance. When I finally found one, the first thing he did was go through what “normal” range of motion is for most of my joints and to establish some limits beyond which I really shouldn’t be moving them to ensure my funny bone stays connected to the rest of my bones.  He will work with me throughout my not-FMLA, including designing a home program I can continue anywhere, including in the 9th Circle of Hell.

It took me until after the session to crystalize what was nagging at me about my “hyperextended” range of motion behind my back. If what I am capable of is “too much,” then how do non-mutant women ever zip up their dresses?!

I have never met a dress I couldn’t zip on my own, which is a good thing because my Partner is the first human I’ve been able to live with. I finagled my way into a single room in my sophomore year of college, and I never looked back. I am not good at having strangers in my personal living space. (Heck, it even took about four months to get used to living with my Partner.) In all that time, I have worn dresses to various functions. Now, suddenly, I’m told that the way I zip them is actually hyperextending most of my arm joints. What’s the alternative? For now, it’s asking my Partner to zip me up.

He is more than willing. (Though being a funny bonehead himself, he happily reminded me that he only has to own a handful of sports jackets, five pairs of similarly colored dress slacks, two colors of dress shoes and two suits to complete the male professional wardrobe as he agreed.) But, it made me wonder how single women without Ehlers-Danlos Syndrome handle zippers in the back of their dresses? If I’m understanding my physical therapist – and my Partner – correctly, most humans can’t zip up a zipper that extends the entire length of a dress from butt to neck on their own? I legitimately never knew this.

A brief internet search suggests this to be true. There are even devices made for single women to help them zip up their own dresses? Women, why do we stand for this? Women’s fashion is cruel and unusual punishment in so many ways, but it’s a special level of betrayal that a staple of women’s fashion for “coupley” events like weddings and first dates requires expensive contraptions for a single woman to put on. Or, that a woman could conceivably make the C-suite all by herself but still need to ask her significant other to help her get dressed for it in the morning?

There are other places that designers could put zippers. I’ve seen dresses with zippers up the side or no zippers at all. Yet, the vast majority of my dresses have had zippers straight up the back that require a range of motion that is “beyond normal” for humans. Why are women such masochists for “fashion”?  Can we all agree now that owning a twenty-piece professional wardrobe like my Partner makes much more financial and physical sense, especially for spoonie women? Can we agree to some women’s code wherein we all don’t purchase clothing that requires special equipment to put on?

I’ve been intrigued by the idea of a minimalist wardrobe for some time, but “minimalism” for women still requires being creative so that the same small number of clothing items are worn in continuously inventive ways that look like they are many more items. That takes creative commitment for which I don’t have the mental energy. Owning fewer clothing items additionally means more of that most feared task for anyone with ADHD: laundry. Laundry is the bane of the ADHD existence. I can’t quite embrace minimalism simply because of its laundry commitment. However, I am now seriously considering boycotting dresses with zippers up the back. I trust my Partner to always be there to give me a “hand up,” but I resent that some designer I’ve never met could force me into a situation wherein I have to either spend additional money or rely on others. I’m not scratching their backs with any more of my money unless they scratch my back and make their clothes fit within my new “pretending not to be a mutant” human lifestyle.

Balanced Scorecard

As told by Eckhart Tolle, a Buddhist master named Ram Dass once stated, “If you think you are enlightened, go and spend a week with your parents.” I’ll be honest, I wasn’t super enthused with Eckhart Tolle’s books in general, but I did like that quote.

It appears to be a common enough occurrence that we can never fully escape who we were in childhood when we return to the place we lived while growing up. That…sort of sucks massively when who you were growing up was a traumatized kid with no safe space to create her own identity without it being used as a weapon to bludgeon her with, a system that tore her family apart and claimed lives literally and figurately, and a pesky habit of using dissociation and time loss to hide from it all.

For many, the smartest thing to do would just be to never return to the Gods-forsaken places of their youth at all. Enlightenment is overrated in the face of basic safety. It sucks more if, as a thirty-something adult, you are repeatedly stuck returning to that place because the damn system only got worse even after you left, the black hole of bureaucracy won’t let you yet get an innocent family member out to another state (gods-damned waiting lists), and your version of “regression to childhood” not only seems to be too often to feel like that same helpless kid again in the face of the system that made you that way but also to regress to the same coping skills: dissociation, time loss, and misplaced sense of any adult competence, oh boy!

Continue reading “Balanced Scorecard”