Improv #11: I’m Mrs. Bright Blogs

*Knock knock*

“Who’s there?”

“The Bright Side”

“The Bright Side Who?”

“The Bright Side Who Doesn’t Actually Exist”

“Oh. Then I guess this is just another dissociative conversation with the bully-in-my-brain, then?”

“You catch on not quickly at all, don’t you? Also, your joke sucks.”

I’m fairly sure the first rule of building a blog audience is “own your domain name so you can engage in SEO and promote yourself across social media.” I failed that rule the moment I set up my account because I was too afraid to pay for an anonymous blog with a non-anonymous credit card. I also do not have the spoons to maintain more than one social media site, period.

I maintain a free site even though my lack of spoons has gradually led me to dial back on the other paranoid hoops I used to jump through to maintain anonymity. Part of my expression of a PTSD sense of foreshortened future is a fear that, if I did dare to make that all-of-$36-dollar annual investment in a domain name, I’d immediately go broke. I would be inviting the wrong kind of irony magnet. Then, my audience accustomed to something simple like “lavenderandlevity.com” would all abandon me as soon as continuing to follow me required the modicum of effort to bookmark “lavenderandlevity.wordpress.com” again. If you follow me while I use the free version, I suppose you’ll probably follow me on a paid version. But, would those who would only follow a paid version ever bother to reverse course? Do I really even want followers for whom I have to write witty, engaging content all the time? C-PTSD says just stick with free: I’ll never have to fear inevitable future rejection from potential future financial disaster. C-PTSD is dark.

Which sucks because…

Continue reading “Improv #11: I’m Mrs. Bright Blogs”

Advertisements

Triggersplaining

TW: Talking potentially triggeringly about someone else talking definitively triggeringly about the Kavanaugh hearings.

I talk very loudly at times. It’s an occupational hazard of ADHD. In hindsight, I’m sure that I have said things about things that have happened in my life loudly enough into cell phones in various public places and on various forms of public transportation – possibly even this summer – such that my coastal co-commuters have formed firm impressions that the 9th Circle of Hell is not the sort of place they should put on their tourism bucket list. On a few occasions, they may even have had to awkwardly share a train home with their crying stranger.

I’m thoroughly oblivious to the volume of my voice, especially when I’m upset. To the best of my knowledge, though, those unwitting unease-droppers only learn that the 9th Circle of Hell is a terrible, horrible, no good, very bad place. They don’t know the details of why it is so horrible, both for my safety and for theirs. I don’t share any specific details of lived traumatic events over cell phones. 1) Who would I be talking to on a cell phone that I trust that much? The only person I share those things with – besides the entire Internet, of course – is my Partner. If I’m on a train, he’s probably no more than an hour away from hearing more detail than he ever wished to have seared into his brain about the most recent horrible thing inflicted by that place for the next three hours, so a tearful warning to brace himself is probably sufficient for the phone call. 2) It’s hard to be anonymous when I yell a lot. ADHD. It’s not just for interrupting. It’s for interrupting obnoxiously enough that the whole room takes notice. 3) Most importantly, I may be fairly oblivious, but I have learned what triggers are and why overly detailed accounts of trauma shared in unexpected spaces might inflict on others the kinds of PTSD episodes my boss so charmingly calls the marker of a “difficult working style.” I’m still uncertain if PTSD or some other spoon-sucking diagnosis will eventually cost me my job, but taking someone else down at the same time seems like forfeiting to the 9th Circle of Hell without so much as a fight.

Given that I am generally as oblivious and audible as they come, I find it – surprising – that I still have more subconscious self-decorum then the presumably neurotypical know-it-all I shared an evening train ride home with tonight. The guy – dressed in what I presume still qualifies as generic early 20s hipster while proudly manspreading across three seats – was boasting loudly to his cell phone partner about how sensitive he was for recognizing that sexual assault survivors might be re-traumatized by what they had heard during the hearings today, how he had taken up the mantle of explaining to his less-enlightened male friends exactly how prevalent sexual assault was, how there are many reasons why women might not come forward, and how he considers himself an ally. Good on him and all –

–  except for that bit where he explained all of these things by shouting them into his cell in a train car populated enough to be carrying at least a couple of survivors, based on his own quoted statistics?! He then illustrated his point about how certain words and phrases that don’t register to men can trigger women by offering a play-by-play of the Kavanaugh hearings today in the same booming voice.

Continue reading “Triggersplaining”

Where’s Whoopsie #14: Where’s it Hurt?

Traveling and being unwilling to bring anything I have actually invested time and effort in with me to Hell means I haven’t posted a Where’s Whoopsie since July! I suppose I could have posted some of my decidedly not-safe-for-work swear word drawings that I relied upon instead of geometric patterns to express my feelings during my time in the 9th Circle of Hell, but even I don’t care to see them, though swearing out loud feels like a great way of reminding myself I’m not in that place anymore. I’m fairly confident some of those swear words leaked into my blog posts anyway over the past few months.

However, I feel like posting something just because I need to mentally distract myself, and typing hurts physically even if it might help mentally. Thus, I’m using the fall back of pretty pictures to make up for a decidedly lackluster pain-fogged blog post. Something appears to be going “around,” and proximity to sick people has resulted in the inevitable acute illness coupled with massive amounts of all-over pain. I would dearly love to understand how bacteria and/or viruses exacerbate joint problems caused by defects in collagen, but they certainly seem to. Acute illness seems to have triggered a truly agonizing all-over EDS joint-pain flare. I’m exhausted but on my second night of painsomnia. The next time someone compares their cold to my chronic illness, I’m going to remind them that we get all the same bugs, then have to deal with another week of our normal symptoms being on overdrive to top it off.

Continue reading “Where’s Whoopsie #14: Where’s it Hurt?”

Messages in a Bottle #7.2: 525,600 Words

Written at some point prior in May 2018, intended for 5-26-18, my one-year blogiversary. The intro to this post (including why it is so delayed) is here.

525,600 minutes, 525,000 moments so dear.

525,600 minutes – how do you measure, measure a year?

In daylights, in sunsets, in midnights, in cups of coffee.

In inches, in miles, in laughter, in strife.

In 525,600 minutes – how do you measure a year in the life?

How about love? How about love? How about love? Measure in love. Seasons of

love.

525,600 minutes! 525,000 journeys to plan. 525,600 minutes – how can you measure

the life of a woman or man?

In truths that she learned, or in times that he cried. In bridges he burned, or

the way that she died. (don’t worry, not a tw, despite what the lyric might suggest!)

It’s time now to sing out, though the story never ends

Let’s celebrate remember a year in the life of friends

I had to perform that song as a pledge event for my sorority in college. Pledging unending sisterhood or some such. Does it surprise anyone that I joined a sorority? Honestly, it kind of surprises me, too. I’m also kind of surprised I didn’t fall over while attempting to vaguely “dance.” Undiagnosed Ehlers-Danlos Syndrome explains a lot in hindsight about why I got kicked out of ballet class (and soccer) and hidden away in the back where no one could see me for that college initiation “performance.” But, rush was a thing that was a fairly big event even at my geeky college. I did it as something to do to fit in in a new place, and I was sufficiently mystified when offered a bid that I accepted it partly on some vague grounds of “leadership activities look good for grad school” and partly some deeper, “you mean there might be a school where I’m actually vaguely acceptable for who I am?” I am a very forward planner and easily flattered by simply not being rejected.

Continue reading “Messages in a Bottle #7.2: 525,600 Words”

Blog Awards Series #3/Messages in a Bottle #7.1: 525,600 Moments of Blog Awards

Today’s Questions are courtesy of Ease the Ride. They are both the hardest questions and the easiest questions to answer of all the blog awards, because there are really only three of them, and I had previously written a blogiversary post that, in theory, should have answered all of them. It was the post I intended to post for my one-year blog anniversary. I never posted it, so now it has become a blog award. The questions are as follows:

1) Write a paragraph of something positive about yourself

2) Briefly tell the story of your blog

3) Give two pieces of advice to new bloggers.

Continue reading “Blog Awards Series #3/Messages in a Bottle #7.1: 525,600 Moments of Blog Awards”

Blog Awards Series #2: Veteran of the Blog Awards

Back in college, I was an RPG gamer. I didn’t actually start with D&D, though. I started with a few more “freeform” type systems where I could create my character with all sorts of attributes that don’t fit into the standard D&D class system. I’ll be honest, D&D felt kind of limited after having freeform as my introduction to gaming. (If anyone ever wants to run an online game in some weird indie system, I’d totally join! I’d just be years worth of rusty at it!)

One of those more open-world systems had a trait you could offer your characters called “Weirdness Magnet.” It was exactly what it sounded like: weird things would just keep happening around your character. I remember the description was something akin to “If there was exactly one talking alien dog that would ever visit Earth, they would immediately stroll up and say hi to your character.”

I created a character at one point who had a variant of that trait, who was an “Irony Magnet.” Whatever the most ironic possible consequences of what they stated would come to pass. I’m feeling a little like an irony magnet – and not just in improv – myself today.

I talked about the kind of Little List that I usually think about – or, rather try not to think about – in my last set of blog award questions with regards to the 9th Circle of Hell. I legitimately did not give any mental attention to that other type of list that also exists, AKA the list of registered abusers with substantiated claims against them who aren’t allowed to work with the vulnerable.

Those lists haven’t been of much help in most of my dealings with the 9th Circle of Hell. Even when I could substantiate the abuse itself, the system protects the perpetrators to the degree it is virtually impossible to pin the action on the specific person accountable, which makes the substantiated allegation itself worthless, for all intents and purposes, since no one pays for the crime that is documented. Assuming that I ever did hold someone accountable, the list, I assumed, would be useless, as providers also don’t bother to actually do the background checks to determine they are employing someone who isn’t allowed to work there.

Well, that generally useless list has some additional names on it, and I’m the reason they are there. And, based on the date of the official letter, they may have been put there while I was studiously avoiding thinking about that other kind of list in my last blog award. Irony magnet, thy name is Lavender…

I feel like I should feel more victorious over this. I especially feel like maybe I should feel more victorious because, if a couple of others we’re working with are to be believed, further investigations are in the works and perhaps they will lead to more far-reaching actions. (I won’t say any more than that, because, well, I don’t want to be the idiot that jeopardizes future outcomes by speaking about them prematurely. I will only allude to what has been substantiated.) Yet, as I’ve mentioned before, there is a persistent habit of not bothering to check the lists before hiring decisions, so does a list that isn’t enforced really exist at all? Also, I’m honestly just exhausted. I’ve been dealing with this for longer than I’ve been a legal adult, and I have lived the brunt of so much crap over the years that any tiny victory feels irrelevant in the face of how broken the overall system remains. Hell, I’m doing any entire light-hearted series of “get to know me” questions just in the hope that there will still be a me left over after this journey through Hell ends. Years of trauma take a toll.

I said this to my Partner, and he asked if my blog award series included any questions about songs that represent my life. (Another fun fact: I used to assign my RPG characters songs that would help coalesce their personalities when I designed new characters.) If any do ask, he told me that I should include the song Veteran of the Psychic Wars as my song for my backstory, both with my family of origin and with the broader 9th Circle of Hell. I have to say, thinking about that other list and the new names on it, I see the applicability. My primary response to the new names on the list – when I can manage to muster anything beyond just psychic numbing – is just to agree that the line “wounds are all I’m made of…did I hear you say that this is victory?” certainly describes how I feel about this “victory.”

Still – given the irony magnet that my first set of answers ended up affording – let’s see if I can find a way to answer these next set of questions with something akin to me winning the lottery, eh? Or maybe just winning a free trip somewhere on my bucket list, since I’ve written about travel more often than I’ve written about little lists and, to date, no conveniently opportunities to cross things off have shown up. (I’d live with whatever irony came along with the trip just to have a free trip, at least so long as my irony magnet didn’t somehow lead to me winning that trip from the 9th Circle of Hell state tourism board…)

Today’s Questions Courtesy of Alison at The Unabashed Autist

Continue reading “Blog Awards Series #2: Veteran of the Blog Awards”

Blog Awards Series #1: The Internet is for Blog Awards

We could alternately title this post “What Do You Do with a Degree in STEM on Not FMLA?”

I have never seen Avenue Q. This, in and of itself, is not that unusual, even for someone who likes musicals. I’ve never seen Hamilton, and that boils down to nothing more than the fact that even the cheapest tickets are multiple hundreds of dollars! For many years, Avenue Q was the Hamilton of its day. I had the soundtrack on my playlist, but couldn’t afford to see any production of it as a poor grad student.

However, eventually, I got tickets for it. I got tickets for it no less than *three* times in fact, and each time something managed to happen. One time, it was a major argument with my Partner that was triggered by – what else? – PTSD symptoms. That argument ended up being very instrumental in us getting to where we are today, so I don’t regret it. It helped me to learn to trust. It helped me learn that sometimes things can unravel and still be stitched up again. It also meant I missed orchestra section seats to Avenue Q.

The second time we attempted, I honestly don’t remember what kept me from actually using our tickets. It might have been 9th Circle of Hell stuff or work stuff: I honestly don’t know anymore! The third time we were just plain too sick to use the tickets. By that time, we were no longer risking big money. We simply had tickets to a local community theater production, but still, my Partner and I were ‘cursed.’

We talked briefly about seeing if there was a local production of Avenue Q during my not-FMLA, especially one before we returned to the 9th Circle of Hell. It’s probably good we didn’t, as we both have spent the past several days incredibly sick. We’d likely have missed the show again, were we to have tried.

Although I just posted yesterday, I’m going to go ahead and start my blog awards series today. I’m only, oh, a week or so later than I claimed! I have already acknowledged I have blog awards going back to July 2017.  If I don’t just start posting, the ADHD forgetfulness probably means I’ll forget again until it’s too embarrassing to bring up.

I take back everything I said about WordPress’s new save feature. I patiently found all seven of those blog awards and saved them on the app on my phone. Guess what posts are no longer showing up? Sometimes technology works, and you are the broken one. Sometimes the beta version really is broken, and that is absolutely what happened with the WordPress save feature! I planned to start with the oldest post and work forward, but I’m starting instead with the most recent. It was the easiest to find!

Today’s entry is from Ashley of Mental Health @ Home:

Continue reading “Blog Awards Series #1: The Internet is for Blog Awards”

Messages in a Bottle #6: Cool as a Snowball in H#ll

From what I can tell, we briefly hit temperatures that were literally hotter than (the 9th Circle of) Hell this week. And, just as the Northeast might get a break from the insane heat wave that is gripping most of the country – for two days at least – I might be leaving it for another roundtrip to Hell. Argh. The 9th Circle of Hell additionally lives up its name by having always been unlivable in the summertime for someone growing up with undiagnosed Ehlers-Danlos Syndrome and the dysautonomia that likes to hitchhike.

I recently(ish) read two separate blog posts (by Narcoleptic Aspie and Crafts, Chronic Illness and Adulting) about how bizarre trying to use a Fitbit or another fitness tracker is for someone with a condition that includes autonomic nervous system dysfunction. Lavender from two years ago completely agrees with that sentiment.

I also discovered this random “journal” entry – not even written in my usual locked leather-bound journal because I was simply too out-of-it to hand-write anything – floating around in the flotsam and jetsam of my personal Dropbox.

The date of syncing of the post was late-July 2016, though given that my text notes sync to Dropbox only when I use wifi, not data, on my phone, the note itself could have been written on my phone anytime within a few weeks of that date. Out of curiosity, I went back and looked at my phone to see what Samsung Health recorded as my low heart rate at around 5:30am in July 2016. (Yes, this does mean my phone is over two years old, for anyone asking. I drop it constantly I’m not going to replace it every time a new model comes out just to shatter another screen!) I suspect this entry corresponds to a heart rate of 46 on July 12th, 2016. My recorded high for that month (156) also seems to have come at a time I marked myself as “at rest.”

It’s strange to think that if, on that date, I’d considered that I actually did have those extremes of heart rate while simply sitting inside in the A/C – and that it was my body, not my technology, that was broken – I might have been diagnosed at least a year earlier. But, of course, I assumed the technology just wasn’t that reliable. (Also, would that I could go back in time to a moment when the world wasn’t ending right now, as was the case two years ago! You know it’s a Messages in a Bottle when it contains that line. The world most certainly isn’t okay in “right now, right now!)

Continue reading “Messages in a Bottle #6: Cool as a Snowball in H#ll”

Where’s Whoopsie #13: I am the 1 in 5

Happy Fourth of July from one of the 1 in 5. Which 1 in 5? Well, probably not the one you are immediately thinking. Yes, I am one of the 1 in 5 Americans who experience mental illness in a given year. I’m also one of the almost 1 in 3 Americans living with multiple chronic conditions (and one of the 30 million of us living with five or more diagnoses!). However, I’m talking today about being one of the 1 in 5 Americans who have gone to a protest since 2016.

Our country was founded on ideas of Life, Liberty and the Pursuit of Happiness. Those are being denied to too many of our countrymen, including members of my own family. I believe it is patriotic to hold our leaders accountable for being the country we claim to be. My advocacy has taken place in intimate courtrooms and on huge street corners. Because I am, however, also one of those other 1 in 5s and one 1 in 3s, protesting isn’t always the most straightforward thing. Thus, this Fourth of July, I thought I’d post about how I have pulled off attending protests with ADHD, C-PTSD, social anxiety, depression, migraines, dysautonomia, Ehlers-Danlos Syndrome, IBS and just the general B.S. that – while they aren’t evil incarnate like the Republican leaders willingly setting Americans up for injury or death by dismantling our social safety net – even the well-intentioned Progressives who arrange protests are still often so very clueless about how to make protests inclusive for differently abled Americans.

Thus, I present Lavender’s Fourth of July Guide to Protesting as a Spoonie

Continue reading “Where’s Whoopsie #13: I am the 1 in 5”

My PTSD Awareness: Currently Subject to Mental Health Austerity Policies

PTSD_Awareness

Trauma_is

PTSD sucks. I have previously written 48 posts to this effect. (But who’s counting?)

Today is National PTSD Awareness Day. I’m still generally too overwhelmed in my ability to cope from ongoing 9th Circle of Hell trauma and PTSD symptoms – oh the irony! – to muster up my usual witty commentary on my awareness of awareness months at the 11th hour.

Instead, have some humor (with a grain of real truth in it) courtesy of my Partner instead.  This conversation took place tonight in regards to whether I should still go to open mic night knowing I have to deal with the 9th Circle of Hell again on Friday. I felt guilty for not obsessively staying home and continuously preparing, even though that was liable to just end with me a dissociated puddle on the floor.

Partner: “Remember how austerity was a resounding success for the world’s economies during recent economic troubles?”

Lavender: *Crickets*

Partner: “No? Well, mental health is the same way.”

Take care of yourself. Austerity in economics and/or mental health care is rarely a sustainable solution for long-term shocks.