Read Bad Books

Why do Targaryens make terrible stockbrokers?

Their assets always end up in a fire sale!

I am no longer sure I’d call anything George R.R. Martin writes “good.” He burned some bridges with this leal reader with Winds of Winter. I finished a real-life Ph.D. with ADHD in less time than it has taken GRRM to write one book. I’m more than fine with HBO scripting the only conclusion to a Song of Ice and Fire to ever see the light of day. At least it means that there will be a conclusion. There is, however, still something disheartening about getting most of the way through the book GRRM wrote instead and realizing he only covered the first half of 300 years of Targaryen history. Fire and Blood: 300 Years Before Game of Thrones (a Targaryen History) is an epic monument to paid procrastination and GRMM still couldn’t even finish it? Really?

That is…disappointing. Especially given the fact I am listening to the prequel on audiobook, and it is 26 hours long! I’ve been encouraged by my neuro-ophthalmologist to rest my eyes when I don’t need them for work because their ability to focus together continues to decline. Thanks, Ehlers-Danlos Syndrome. Listening to GRRM’s words instead of reading them makes certain quirks of his writing almost painfully apparent. (I wonder if his editors were equally burned by this point and so desperate to ship anything new of his that they only gave Fire and Blood a minimal once-over?)

Three-quarters in, I’m not sure from a literary standpoint whether Fire and Blood is actually well-written.  It overuses words. Like, seriously overuses them. Like “overuses them so much that it has become a game for my Partner and me to take a non-alcoholic drink every time he uses the word ‘leal.'” (GRMM is obsessed with loyalty, but our ‘drinking’ game has to be non-alcoholic because I’m pretty sure we’d both die if we tried to use alcohol during the playing of The Leal Deal. GRRM has singlehandedly ensured that even this girl who is dysautonomic has consumed many more than her recommended liters of water daily this week.) It also has an annoying habit of setting up mysteries that are never resolved. “What was in that letter” will never be known to readers. I’m fairly sure GRRM knew what was in the letter – it’s his imagination after all – so would it have killed him to tell us? What does playing coy accomplish in a one-off?

I am not sure, for these reasons, whether what I’m currently reading is actually good. I am sure, however, that admitting I’m reading it is, at least, not embarrassing. That is not true of many of the other books I have read over the years.

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Where’s Whoopsie #20: Snow Wrist

Career lessons for the chronically ill:

  1. Write out your routine in your planner, including basic self-care essentials like physical therapy and tracking water intake and medications, alongside your work deadlines. It’s a nice little shot of dopamine to cross off basic self-care tasks in your planner, and it helps with managing energy levels at work.
  2. But, write all appointments in pencil because life is unpredictable. Sometimes you will, for instance, have to reshuffle an entire week’s predictable routine of physical therapy, actual therapy, meals and the like to attend a beneficial career training. It helps if you can erase to adapt.
  3. If and when you willingly disrupt your usual daily work routine to attend an onsite continuing education training that will likely make you more desirable to positive unpredictabilities such as career advancement in the future, suck it up and ask to take notes on a laptop. Planners can be written out by hand. Course notes cannot. DO NOT try to take notes by hand with a pen for two hours. It can – and will – destroy your wrists.
  4. If you ignore the advice in #3 above, at least do not further compound the problem by then attempting to write a full blog post within 48 hours of failing at the above.

I am guilty of #3 this week, and my wrists and hands are screaming at me for it. I will attempt to take my own advice and not also be guilty of #4. Full blog posts will resume as soon as my joints have forgiven me for thinking I could still take hand-written notes this far along in a progressive diagnosis. I couldn’t take notes by hand even back when I was still in undergrad. I don’t know why I forgot that fact during professional training this week?

In the meantime, have a picture of Ehlers-Danlos Syndrome. It is, after all, the reason (alongside Rejection Sensitive Dysphoria and a bully-in-my-brain that still feels toxic shame over asking for accommodations like using a computer instead of just taking hand-written notes like everyone else. The Evil Queen has nothing on the bully in my own brain.) I should have just said I can’t handle hand-written note taking, even if the training did take place over a “working lunch” and most people were capable of balancing food in one hand and a notebook and pen in the other. I didn’t. Because toxic shame sucks…

See you all when I’m finished paying for that lack of self-advocacy. (The artwork, for anyone wondering, was created before the aforementioned overdoing it.)

EDS_WheresWhoopsie - Copy
<Image> The Evil Queen staring into her magic mirror. Magic mirror asks her whether she means the age a body looks or the age a body feels when she says “fairest,” as that distinction will affect its answer. In the second panel, a zebra’s ears are burning. The zebra wonders if it means someone is thinking about them or if it’s just a new symptom. <Image Text>: Ehlers-Danlos Syndrome: when your skin is as fair as Snow White, but the pain turns you into Grumpy Dwarf!

Need a recap of anything I’m talking about in any post? Check out the Glossary of Terms.

Shooting for the Spoons

A lot of popular wisdom is rather dubious when actually examined. For instance, the common career advice to, “Shoot for the moon. If you miss, you will still land among the stars.” Unless the flat-Earthers know something I really don’t, even good old Sol is much further away from us than the moon…

Another bit of dubious popular wisdom I hear regularly from would-be experts (who have usually never heard of most of my diagnoses before) is, “An apple a day keeps the doctor away.” I certainly am careful with my diet, but an apple a day does not keep the doctor away for me. In fact, following the common wisdom for most of my working life to eat as naturally as possible on business trips to minimize GI symptoms has been about the worst possible choice for me. On travel per diem – and thus not responsible for remembering expiration dates for the fresh veggies and fruit that I so often forget in my fridge for weeks until they spoil – I would load up on all of the fresh fruit in an attempt to keep the gastroenterologist away. And, yet, I always felt like my IBS symptoms were worse on business trips anyway. The inevitable refrain from the “apple a day folks” – and many of the doctors that were supposedly being kept away – was that it was just “my anxiety” exacerbating my symptoms. So, I both had to plan for disaster each time and for the bully-in-my-brain to refrain how it was my fault since I couldn’t just “relax.”

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Crushing it

Things that went through my mind in the process of composing this week’s blog post:

  1. To Partner: “We need more of those crushable baking potato chips that are not potato chips…”
  2. Hey, there is an entire site devoted to logging prior weather in the U.S.! Someone anticipated the deep-seated need of the ADHD community for a site to fact check them when they write, “Even though it seems hard to believe when we hit the 70s this week, we were in the 20s just last week” and they can’t perceive time well enough to remember if it really was “just last week” – or only felt like it.
  3. Good. My Partner added bread crumbs to our order.
  4. That historical weather site was probably intended for historical fiction. Solipsism is great in theory, but the idea that my mind shapes all of reality falls apart immediately upon being reminded that there is (still) no site to determine the actual word I am looking for from the random descriptions of my ADHD/brain-fogged mind. If the Internet were built around me, there would be. Ipso facto, my mind is not the only one that exists.
  5. To Partner: “You are right that if we order bread crumbs instead of making them, then they are not ‘crushable’ but ‘already crushed.’ Isn’t tense relative to the frame of reference though? By the frame of reference of the bread crumbs, the description is ‘already crushed.’ Potato chips don’t come pre-crushed. So, didn’t I use the correct tense for their frame of reference?”
  6. The moment an AI can obtain ‘bread crumbs’ from ‘crushable baking potato chips that are not potato chips’ – regardless of tense – is probably the moment we achieve the Singularity.
  7. This list of random thoughts is about to be longer than the rest of the blog post.
  8. This is also why my Partner and I crush games like Taboo and Heads Up. Maybe I should just go with that and make this post about how effective communication in relationships becomes even more convoluted with brain fog?
  9. I should still explain why I was originally looking up the weather last week to fact check myself, even though it seems kind of anti-climactic now to state that chronic illness and ADHD can lead to word-finding difficulties when I’ve clearly shown it.
  10. Wait, my original example works just as well as an example of effective communication with chronic illness! I can just relay the original conversation from last week’s cold snap that was intended to become a polished blog post verbatim! Crushing it.

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Trust in Mental Health Treatment #5/Where’s Whoopsie #19: Ire of the Storm

The reason I am awake at 4am is below. It is also, apparently, in the papers (or, at least, the digital online copies of the “papers” since it’s 2019 and I don’t remember what any dead-tree paper looks like outside of my intimidating sketchbook…)

I’ve been noticing an uptick recently in the number of media reports of horrible things happening in psychiatric inpatient facilities and other state-funded “care” facilities of various types. There probably hasn’t really been an uptick in the number of them happening, just an uptick in the number of them that I’m immediately aware of given that I now follow a number of blogs that share such things. Sadly, many of these blogs have shared them because the blogger was/is a patient of one of the facilities involved in the scandal, and they aren’t surprised by it. Or, the blogger has shared a personal story of a recent experience at the hands of the system to draw awareness to how even facilities that aren’t in the papers can still act humiliating and degrading towards their clients. These bloggers are trying to create awareness of the full range of mistreatment that occurs at such places via their own past and present experiences. To these bloggers, I’m very sorry for what you’ve experienced and very proud of you all for speaking up, often non-anonymously.

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Improv #14: Sing the Moment

*Knock knock*

“Who’s there?”

“The Perfect Moment”

….

….

“The Perfect Moment who?”

“It’s too late. You already missed it.”

I could use this post to say something vaguely motivational like “feel the fear and do it away” or that it’s possible to “seize the day,” even with chronic physical or mental health challenges. I could use this post to talk about FOMO or the crash that occurs when the future calls in a lien on the present in payment for spoons borrowed against it. I could do any of those things, but I won’t. I may be the only guru I trust, but I only (mostly?) trust myself because I don’t attempt to say the kinds of motivational stuff even I can’t listen to without rolling my eyes. I still prefer snark over spirituality.

Also, I know that I couldn’t back those topics up if I tried. I mean, how could I plausibly talk about seizing a moment when I have no idea what a moment even feels like?

Did I ever mention that researchers out there have amassed evidence that, at heart, ADHD is a neurologic deficit in time perception? Our sense of time is non-neurotypical, to say the least, and totally gone at worst.

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Where’s Whoopsie #18/Subway Sociology #5: Mixed Martial Arts

First, for those wondering. The bad news is that I don’t have a new job quite yet. The good news is that that is because the interview process keeps getting longer each time I go through it. I’m not finished with it yet, but I’m also not out of the running yet, either. There are more stages than I expected. I’ll be making that longer commute at least one more time before I can determine if I’ll be making it permanent.

I’ll use that “at least one more time” as a chance to gather more data for my current hypothesis that one particular section of the subway line that I would need to take as part of that new commute truly has a higher likelihood of entertainment value than the earlier sections of the same line that I used to take daily. I find that, including this post, I have now written about the actions of my fellow passengers – and/or other ads and experienced events – five(!) times. These points of data make a beautiful line (bonus points if you are now singing that song along with me), and, for a would-be daily rider who is also a data analyst, a beautiful new series for my blog. I’m retroactively subtitling the previous four posts about commuting “Subway Sociology” entries #1#2, #3 and #4.

One hypothesis is that this more-northerly-than-I-previously-commuted section of the line just has more interesting passengers in general. The null hypothesis, in turn, is instead that I have just needed more distraction from my own brain while riding this particular section of the subway – and thus have been more inclined to notice the fascinating actions of my fellow passengers while riding the rails – than while making other trips. I’ll need more data to truly determine, but, either way, my fifth unofficial/first official foray into subway sociology was a welcome distraction during what would otherwise have been a solid hour for the bully-in-my-brain to psych me out before my last interview.

It takes a lot of confidence to do anything other than stick headphones in your ear and avoid eye contact with fellow passengers on a subway. It takes a unique level of confidence to do double duty during your commute and incorporate your daily workout into it as well. Yet, one of my fellow passengers on the way to my last interview had the brass balls – er, brass bars – to do just that.

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Written on the Prophetic Plates?

This Is Why We Can't Have Nice Things
<Image>: Smug cat on a ledge with a broken vase on the floor. <Text>: This is why we can’t have nice things.

My Partner and I are going to a game night tonight hosted by someone I met through an ADHD support group. So, of course, I had a dream that the hosts kept serving me party food on real plates, and I kept progressively dropping them. I desperately tried to explain, “Please stop giving me nice things. I drop things constantly,” but somehow the china I was handed just kept getting progressively finer…

On the one hand, I hope that doesn’t become a self-fulfilling prophecy. It is wet and slippery out today. I also didn’t sleep well – no thanks to that dream.  And, it would be nice to actually make “friends” with people before I break something (of theirs or of mine) in front of them. On the other hand, if there will ever be a household where, “I know I’m clumsy, but I forgot to put my plate down before my hands got too tired” might actually make for an understandable explanation, perhaps it would be a fellow neurodiverse household?

I’m sure this dream has nothing at all to do with the fact that I read the Ehlers-Danlos Society’s “Mental Health Care Toolbox” on Facebook yesterday or the fact that it noted that people with EDS and HSD have a higher incidence of anxiety, depression, and ADHD. Or the fact that I have fallen down in public places twice recently. Nothing at all…

I'm Not Clumsy. It's Just That The Floor Hates Me, The Tables And Chairs Are Bullie And The Wall Gets In The Way T-Shirt
<Image text>: I’m not clumsy. It’s just the floor hates me, the tables and chairs are bullies, and the wall gets in the way.

Need a recap of anything I’m talking about in any post? Check out the Glossary of Terms.

 

Improv #13/Subway Sociology #4: Party Poppers

*Knock knock*

“Who’s There?”

“Wobbly”

“Wobbly who?”

“Wobbly out in this weather when I know I will fall over? I’m very dedicated to my art, ok? Now offer me a seat on this train before it’s you I fall onto…”

Amtrak preemptively canceled some Acela routes and other regional commuter routes in advance of the snow this weekend. City transit authorities are posting their standard “expect delays on above-ground routes.” In addition to keeping us abreast of their plans to keep us safe – albeit possibly not on time – during the winter weather, both agencies also seem to be touting themselves as the solution to all the city’s partying needs lately.

On the way to Improv today, I saw ads introducing several bus and train operators who “skip the party, so you don’t have to.” I’m guessing several other class members also noticed the recent uptick in public transit emphasis on how their employees ensure we can have a good time by working while everyone else is playing. “Partying” was a prominent theme in our montages today.

There’s nothing more thematically appropriate for that inevitable first time I sublux something on stage and fall over than during a scene in which the administration of a “party school” with a name one letter off of the Ivy League discuss how to improve their image. This was a class, not a live show, so people stopped scene work and asked about me. I almost wished it had been a public show, though, as I doubt I will ever again get such a gift of a scene to play off a sublux and associated fall as “intentional” than during that one.

With a class, it’s…well…as awkward to bring up EDS in advance as it is to sublux something on stage. I’m in the dual position of both performing in indie shows with a troupe, but also simultaneously being a student. I have to actually graduate from the theater’s comedy school if I ever want to audition for anything solo, and graduating to each next level requires not just an instructor thinking I am ready in my performance capabilities, but also having missed no more than two classes out of any session. The Crisis of 2018 ensured that I wasn’t in the position to even contemplate that kind of attendance commitment for the past two sessions, so I never even bothered to register. I also fainted just before the first class of this current session and thus missed its very first class. So, no guarantees I will make the attendance requirement this time around either. My indie troupe – who are all now graduates – didn’t drop me when I got behind last year. I could conceivably have had my first onstage sublux happen during a real performance, with a team who have been warned in advance to just keep going and use the exquisite thematic timing to heighten, heighten, heighten.

But, as with last week’s hair appointment, I don’t typically get that lucky when introducing my diagnoses to new people. Explaining how I occasionally fall over – and to just give me a minute to see if I can reorient my own joints before treating it like a big deal – is still just…awkward. I never know how to respond to the sort of excessive solicitousness that people offer immediately after they first see me faint or pop a joint.

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