I am no longer sure I’d call anything George R.R. Martin writes “good.” He burned some bridges with this leal reader with Winds of Winter. I finished a real-life Ph.D. with ADHD in less time than it has taken GRRM to write one book. I’m more than fine with HBO scripting the only conclusion to a Song of Ice and Fire to ever see the light of day. At least it means that there will be a conclusion. There is, however, still something disheartening about getting most of the way through the book GRRM wrote instead and realizing he only covered the firsthalf of 300 years of Targaryen history. Fire and Blood: 300 Years Before Game of Thrones (a Targaryen History) is an epic monument to paid procrastination and GRMM still couldn’t even finish it? Really?
That is…disappointing. Especially given the fact I am listening to the prequel on audiobook, and it is 26 hours long! I’ve been encouraged by my neuro-ophthalmologist to rest my eyes when I don’t need them for work because their ability to focus together continues to decline. Thanks, Ehlers-Danlos Syndrome. Listening to GRRM’s words instead of reading them makes certain quirks of his writing almost painfully apparent. (I wonder if his editors were equally burned by this point and so desperate to ship anything new of his that they only gave Fire and Blood a minimal once-over?)
Three-quarters in, I’m not sure from a literary standpoint whether Fire and Blood is actually well-written. It overuses words. Like, seriously overuses them. Like “overuses them so much that it has become a game for my Partner and me to take a non-alcoholic drink every time he uses the word ‘leal.'” (GRMM is obsessed with loyalty, but our ‘drinking’ game has to be non-alcoholic because I’m pretty sure we’d both die if we tried to use alcohol during the playing of The Leal Deal. GRRM has singlehandedly ensured that even this girl who is dysautonomic has consumed many more than her recommended liters of water daily this week.) It also has an annoying habit of setting up mysteries that are never resolved. “What was in that letter” will never be known to readers. I’m fairly sure GRRM knew what was in the letter – it’s his imagination after all – so would it have killed him to tell us? What does playing coy accomplish in a one-off?
I am not sure, for these reasons, whether what I’m currently reading is actually good. I am sure, however, that admitting I’m reading it is, at least, not embarrassing. That is not true of many of the other books I have read over the years.
“#whoknewTwitterwasoccassionallyuseful? Not me, at least not until today…”
I do not take the full – or even the half – advantage of social media that a blogger is supposed to, so I can’t actually add my contribution to the #AbledsAreWeird Twitterstorm on Twitter itself. I can say I have been laughing myself silly over that hashtag today. For any spoonie who hasn’t seen it, I highly advise you to check it out when you need a break from the world today.
Since I am not twitterpated by the idea of adding yet another form of social media for my poor ADHD brain to have to manage in general, I’ll add the contribution I would have tweeted if I bothered to maintain a Twitter presence for my blog here instead. (But, though I’m only posting here, seriously go check out the actual hashtag on Twitter too!) I will, though, at least conform to Twitter rules and keep my contribution to 280 characters:
Improv actor share:”Doc 1st thought symptoms were chronic, but thank God my infection was acute. How could I live w/pain forever? Life wouldn’t be worth living!”
Lav(next up w/visible cane):”I guess my share is I’m chronically ill & life is worth living? Kthanxbai”#AbledsAreWeird
Yes, that’s a true story, and from very recently. No, I have no idea what, if anything, I should do about it. The person who made the comment was just a student in a class with me. That class is now over. In principle, I won’t see them again? (I mean, it’s not like I’m going to choose to perform in an indie troupe with someone who’d speak like that when I’d previously shared that I occasionally require accommodations for the physical parts of improv because of my chronic illnesses and they still thought that was an appropriate way to phrase a weekly highlight…)
But, the instructor, who is a regular and very serious theater performer, also did not seem to get that there was anything amiss about that comment. This speaks to the broader complete cluelessness about spoonie sensitivity that the hashtag also makes apparent. There’s clearly a need for more awareness among the theater crowd about a) why a spoonie’s life is worth living, even with their chronic illnesses and b) why if an abled performer doesn’t happen to agree, they should still keep their big fat mouths shut about it since at least 1 in 4 of their audience members will also be living with some form of chronic physical or mental illness.
The theater has been encouraging “tough conversations” around diversity and women’s issues in the theater recently. So, it seems like it might be an appropriate time to point out that many performers – and audience members – are also members part of the largest minority group in America. It is just as critical to have “tough conversations” around how to speak about disability as it is to discuss how to speak about race, class, culture, religion and sexual orientation. I am getting really sick of even so-called Progressives managing to include just about every possible form of inclusiveness except disability in their sensitivity training. I’m also not really high enough up in the theater to know where to start to change the narrative, unfortunately…
Need a recap of anything I’m talking about in any post? Check out the Glossary of Terms.
The reason I am awake at 4am is below. It is also, apparently, in the papers (or, at least, the digital online copies of the “papers” since it’s 2019 and I don’t remember what any dead-tree paper looks like outside of my intimidating sketchbook…)
I’ve been noticing an uptick recently in the number of media reports of horrible things happening in psychiatric inpatient facilities and other state-funded “care” facilities of various types. There probably hasn’t really been an uptick in the number of them happening, just an uptick in the number of them that I’m immediately aware of given that I now follow a number of blogs that share such things. Sadly, many of these blogs have shared them because the blogger was/is a patient of one of the facilities involved in the scandal, and they aren’t surprised by it. Or, the blogger has shared a personal story of a recent experience at the hands of the system to draw awareness to how even facilities that aren’t in the papers can still act humiliating and degrading towards their clients. These bloggers are trying to create awareness of the full range of mistreatment that occurs at such places via their own past and present experiences. To these bloggers, I’m very sorry for what you’ve experienced and very proud of you all for speaking up, often non-anonymously.
Content Warning: I began my Reality Journal on March 7th, 2018. Astute readers might realize that, if we are almost to the one-year anniversary of the creation of that journal, we have already passed the one-year anniversary of its inspiring event. I can somehow concurrently not remember enough details of that night because of dissociation and have vivid emotional flashbacks and nightmares about what could have happened. I’ve tried to process that night in therapy recently, and I’m revealing more details by default in this post. Those details are dark, but they are in the past. Though I write about something horrible, know at least that it is not something horrible from my present. With the 9th Circle of Hell, I know I must be very clear about time or it could be confusing. Be safe when choosing to read this post. If you are not in a good mental place to read about the abuse of the vulnerable in 2018, please don’t. If you do read, please read to the end. The emotions in this post are not directed where they might seem from a cursory glance. Given that this post addresses the Disability Day of Mourning, please also be respectful that, though the worst possible outcome of that night in 2018 did not happen for my family, it did happen for others. My nightmares are others’ realities. The Disability Day of Mourning honors those realities.
Did I ever mention that my Partner and I are weird people? Like “gallows humor” and “eat anything on the planet at least once” weird? Or that we’re advocates for social justice? If not, you have officially been warned.
I may have mentioned before about how my kitty has PTSD from being abused, starved and abandoned before we got her. I don’t think I’ve ever mentioned that she also has kidney issues, old injuries that limit her mobility, and even more allergies than I do. If the abandonment anxiety alone wasn’t enough to prove she is my spirit animal, then the rest ought to guarantee it.
We suspect that her complicated medical issues might, unfortunately, have been the reason she was ultimately abused and abandoned. I mean, we’ve seen it done to vulnerable humans. It’s not much of a stretch of the imagination to assume it happens even more frequently to vulnerable kitties.
We didn’t know about her issues when I first started fostering her. I was just told to shove as much food and liquid into her as possible. She was too sick to eat, so anything I could tempt her with was automatically approved. I fell back onto gold-standard kitty addictions: tuna water and Fancy Feast. She ate both with gusto, and my Partner and I both quickly realized never to combine cheap cat food and smelly tuna in her tummy again. Let’s just say what she produced was thick enough to mortar a bunker and lethal enough to weaponize to use to clear out the bad guys holed up in that bunker at the same time. She put my two-ply lullaby to shame.
Nothing says a “third date” like an emergency trip to the grocery store to buy every possible form of air freshener in the aisle at nearly midnight. I say she’s “our” foster failure. And, in her mind, she is. She met both of us on the same day. But, technically my Partner and I hadn’t even DTR’ed at the time I got her, and her adoption papers are under my name alone. She’s “our” cat in hindsight, but, at that time, I think my Partner really showed his character by helping clean up after her when he had no official responsibility towards her, or me. I don’t regret it. That experience didn’t require half the strength that actually marrying me and handling my caregiving responsibilities demand. Heck, by the standards of my life it was humorous. It even had an actual resolution, which is particularly unusual in my life. One veterinary specialist, some kitty Prozac, and a lifetime commitment to buying her expensive allergen-safe cat food later, and her tummy troubles cleared up. (However, if her special food ever goes off the market, please send gas masks. We’ll need them.)
That experience has become a running joke for the trajectory of our relationship – and spawned another running joke that our kitty eats better than we do. How many people can read right on the can that their pet’s food is safe for human consumption?
We also watch a lot of Food Network, and while we were dating my Partner dared me to make him a meal that “highlighted” her wet and dry food in the same dish, Chopped-style. If I could successfully fool him into going back for seconds, he’d fork over for a Michelin 3-star restaurant willingly. I never quite remembered to do it when he’d remind me. We’re now married, so any gourmet meal would be funded out of pooled money anyway now. But, the challenge has always stood. And, I’ve always had on my mental bucket list – at least I have every 6-9 months or so when something reminds me of it – to undertake it anyway.
For anyone wondering, the Thanksgiving turkey turned out great. Cooking a turkey is like cooking a whole chicken. If you want to practice before next year’s big day, cook whole chickens. Then, do the same thing on Turkey Day for about 3-4 times as long. (Also, turkey enchilada stew and buffalo turkey sandwiches feel much more like a “change” from a week of all-turkey, all-the-time than the standard turkey pot pie and stews that are usually recommended.)
Unfortunately, my Partner sent our only photos to his parents when he last spoke to them. Now there’s a remote chance they could someday identify me as the author of this blog if I recycled those pictures. I used an herbed-butter rub and baked the bird with roasted vegetables for aromatics. The pictures, through the magic of Google image search, could theoretically be vaguely identifiable. Every picture of the same natural feature looks about the same. (I did some digging to prove that to myself before posting Iceland pics last year.) As long as I pick out different photos for his parents and my blog, I can share travel photos here and still keep my worlds separate. But, I can never share the same photos, or my worlds might collide, right?
Not really. All Thanksgiving turkeys also look about the same, so there’s nothing truly stopping me from posting the same pictures here except my ingrained need to keep my worlds separate. There’s nothing except my ingrained need to control to whom and in what situations I reveal just how not normal I am. I am still masking in most of my life, and, though it sucks, I don’t think I’d know how to fully unmask in daily life if I tried. Unmasking hasn’t been safe in childhood, in my workplace and in advocating for my neurodiverse sibling within a regressive, systemically abusive state.
George Lakoff talks about how the moment you mention something – especially if you immediately tell the person not to think about it – all they can do is think about it. So, if I tell you “don’t think of an elephant,” all you’ll be able to think about is the elephant in the room.
Now, I don’t know if he specifically chose the elephant example as evidence that all the metaphorical elephants in the room we aren’t talking about can’t be ignored, but even if he didn’t, there’s a lesson in there about why telling someone to “just not think about” their depression, anxiety, PTSD, etc. will always be doomed to fail. He also used the elephant example as an overt lesson for Progressives that they don’t seem to have taken enough to mind for the 2018 midterms. Progressives, Lakoff argues, need to use their own talking points to their own cognitive advantage. They need to spend less time refuting Republicans and more time standing up for something better. It isn’t enough to just state over and over that they oppose Trump’s inhumane and cruel plans. Because, when they only talk about his position, people don’t really remember theirs – all they remember is the position Democrats told them to forget about! As George Lakoff reminds liberals: if they only oppose their opposition they instead give Republicans twice their voters’ cognitive airtime. Progressives should stick to their own ideas, talking points, and actionable platforms. They shouldn’t mention what they don’t want their voters to even cognitively flirt with from the other side.
Because you really can’t “not think of an elephant.”
Unless, of course, you happen to have ADHD and your office holds a generic winter-holiday white elephant gift exchange.
TW: Talking potentially triggeringly about someone else talking definitively triggeringly about the Kavanaugh hearings.
I talk very loudly at times. It’s an occupational hazard of ADHD. In hindsight, I’m sure that I have said things about things that have happened in my life loudly enough into cell phones in various public places and on various forms of public transportation – possibly even this summer – such that my coastal co-commuters have formed firm impressions that the 9th Circle of Hell is not the sort of place they should put on their tourism bucket list. On a few occasions, they may even have had to awkwardly share a train home with their crying stranger.
I’m thoroughly oblivious to the volume of my voice, especially when I’m upset. To the best of my knowledge, though, those unwitting unease-droppers only learn that the 9th Circle of Hell is a terrible, horrible, no good, very bad place. They don’t know the details of why it is so horrible, both for my safety and for theirs. I don’t share any specific details of lived traumatic events over cell phones. 1) Who would I be talking to on a cell phone that I trust that much? The only person I share those things with – besides the entire Internet, of course – is my Partner. If I’m on a train, he’s probably no more than an hour away from hearing more detail than he ever wished to have seared into his brain about the most recent horrible thing inflicted by that place for the next three hours, so a tearful warning to brace himself is probably sufficient for the phone call. 2) It’s hard to be anonymous when I yell a lot. ADHD. It’s not just for interrupting. It’s for interrupting obnoxiously enough that the whole room takes notice. 3) Most importantly, I may be fairly oblivious, but I have learned what triggers are and why overly detailed accounts of trauma shared in unexpected spaces might inflict on others the kinds of PTSD episodes my boss so charmingly calls the marker of a “difficult working style.” I’m still uncertain if PTSD or some other spoon-sucking diagnosis will eventually cost me my job, but taking someone else down at the same time seems like forfeiting to the 9th Circle of Hell without so much as a fight.
Given that I am generally as oblivious and audible as they come, I find it – surprising – that I still have more subconscious self-decorum then the presumably neurotypical know-it-all I shared an evening train ride home with tonight. The guy – dressed in what I presume still qualifies as generic early 20s hipster while proudly manspreading across three seats – was boasting loudly to his cell phone partner about how sensitive he was for recognizing that sexual assault survivors might be re-traumatized by what they had heard during the hearings today, how he had taken up the mantle of explaining to his less-enlightened male friends exactly how prevalent sexual assault was, how there are many reasons why women might not come forward, and how he considers himself an ally. Good on him and all –
– except for that bit where he explained all of these things by shouting them into his cell in a train car populated enough to be carrying at least a couple of survivors, based on his own quoted statistics?! He then illustrated his point about how certain words and phrases that don’t register to men can trigger women by offering a play-by-play of the Kavanaugh hearings today in the same booming voice.
On three separate occasions recently, I have found myself writing about apologies. I wrote about how my Partner always apologizes for hurting me in an argument – even when we have both said hurtful things – because he knows that wasn’t something I ever heard growing up. Then I wrote in another post how abusers never truly apologize. (Saying “I’m sorry you took it that way” doesn’t count!) Never receiving a true apology – even when I begged for anyone to understand just how badly I was hurting – is part of my personal abuse history. Heck, it’s part of my abuse present. I haven’t yet met an official from the 9th Circle of Hell who gives a damn about the hurt that has been done to my sibling and to those of us who have to deal with the guilt of not having been able to stop it. I’ve only met abusers, bullies, and officials who wanted to sweep the issue under the rug as quickly as possible.
But, there’s another side to talking about apologies that I haven’t written about until now. I haven’t written about how I was never allowed to truly apologize. I made mistakes as a kid – of course, I was a lonely, neurodiverse, traumatized kid – and I learned early on to respond to others using all my weak spots against me by trying to do the same to them before they could hurt me first. If someone had shown they’d go for my jugular, I tried to go for theirs first. (Spoiler alert: it’s actually virtually impossible to truly hurt those who are willing to do that to you, so it never did much good.) I’ve also said stupid, impulsive things just because I have ADHD, I’m hyperactive, and rejection sensitivity hurts like Hell. I’ve responded to my Partner like he was part of my past because arguing itself made me forget my present.
My current therapist would say that I didn’t really need to blame myself for the hurtful things I said to people who had a history of saying hurtful things to me, especially when there were rather large age differences and power dynamic differences. But, when I truly decided I didnot want to recapitulate my own family dynamics in another generation, it felt like I had to at least try to reach out my hands. It felt like maybe the first one to show vulnerability could make the change. We were a family broken by The System, and, thus, maybe – since we hurt each other because outsiders had hurt us first – we could find our way to healing once we understood trauma dynamics.
Another spoiler alert: showing vulnerability just made going for my jugular easier. It just opened me up to another long list of all the ways I’d screwed up over the years – dating back to age 6 at least – and how all of my failings justified anything that “might” ever have happened to me. Maybe vulnerability might have worked with one family member who is no longer with us (or maybe not) – I’ll never know – but it didn’t work with one with whom I tried it.
I’ve never received a genuine apology while growing up, but I also was never given the chance to offer one, either. I wrote in a previous post about how I was upset and triggered by some things another blogger wrote about ADHD. It hit me in a lot of the “it’s okay to hurt you because you should be normal but aren’t and it’s your choice” abuse buttons. That blogger apologized. She broke the cycle. She saw that I was upset, and she cared enough to write. That really was enough for me.
I also know the legacy of my past is that – even if I try to no longer allow others to hold past mistakes for which I’ve attempted to make amends over me – I’llhold mistakes over myself forever anyway.
I’ve written a lot about fighting internal stigma within the chronic physical, mental, or developmental illness communities, but I initially forgot to include the most important caveat when we do so:
That’s ironic, given that the very earliest journal entry I ever wrote was about the right to be forgiven. It’s likely naive and dangerous to forgive those who hurt us intentionally – they’ll take it as permission to keep doing it – but it’s cruel not to forgive those who hurt us unintentionally. It risks making us into the voice of the bully-in-someone-else’s brain. I wrote in my earliest journal entry how I didn’t want to ever be that again. My subconscious thus thinks that I should post that earliest entry to make sure that I’m always truly keeping myself honest to advocating for calling out stigma in a way that opens arms, not closes fists, since I know too well how easy it is to wield a litany of past mistakes against yourself for years.
The song is by The Animals. There are a couple of their songs that hold personal meaning for me. Maybe I’ll write about the others eventually, but, per my notes, this is the one I was listening to when I wrote this first entry that I have never actually shown anyone until now.
Update: I also posted this in the comments, but then I remembered that smarter folks than I often skip the comments. The author of the original blog post that inspired this one contacted me. She has taken it down and apologized. She also seemed like she was still beating herself up over it even after I accepted that apology, so I want to state openly that she doesn’t need to. In talking to her, I’m reminded again that being non-neurotypical so often means communicating is terrifying and awkward and hard. It definitely still is for me, especially in person. We all make mistakes. We all struggle with what we mean to say not ending up being what we actually say. Character is in how we respond to our mistakes, and she showed she had character by caring when her post so severely triggered me. If (when – I have ADHD after all!) I ever upset someone with my writing, I hope my readers will tell me so I can have the chance to apologize, too.
That is something that none of the other déjà voodoo writers I have ever contacted about internal stigma – including Dysautonomia International, who puts that kind of stuff on main public pages – have ever done. I think it was very brave of her. I’m leaving this post up because I’ve seen a lot more than just one déjà voodoo post out there, and, to date, only one person has said: “I’m sorry.” There are a lot of folks who still need to see this post.
But, the author of the post that originally inspired this one is no longer counted as one of those people in my book. I genuinely wish her the best in her blogging tenure, and I hope others will too. Being non-neurotypical is rough. We both know it. It’s important to call out internal stigma, but it’s equally important that we forgive mistakes within a community of people for whom just communicating at all is often fraught with fear and memories of years of failed attempts. Point out mistakes, then welcome their makers back into the community with open arms immediately as soon as they make a genuine attempt to correct them. If we continue ostracizing our own internally long after they have apologized, then we risk becoming abusers in yet another way. We risk becoming those emotional abusers who keep torturing people for their “mistakes” years later without ever giving them a way to move on. I’ve also been on the receiving end of that type of abuse, and I don’t wish it on anyone who cares enough reach out to me.
Do you ever experience blog post déjà voodoo? You know, where you’d think you’ve written about a topic so many times by now that you could cease having to keep writing about it? Where you’d think you could finally put a pin in it? Yet, somehow, the thing that upsets you so much just keeps creeping up, zombie-like, such that you can’t let it rest?
I owe my subconscious an apology. I mocked it a few days ago for being so far up on its soapbox that it wrote an entire novel in my dreams about the need for internal unity among those of us with chronic physical, mental or developmental disabilities. I laughed because I’d written multiple blog posts on the topic already, and shouldn’t that be enough?
I should have understood that my chronically traumatized brain is so obsessed with the topic because it knows firsthand from too many years of experience what my heart doesn’t quite know how to accept: people don’t change. People will always seek to protect themselves first by selling others out. Or, at least most will. So, I’ll probably be writing about why that doesn’t work and desperately trying to appeal to the better angels of the blogger community for the rest of my blogging days.
I read another déjà voodoo blog post just now. This time it wasn’t dysautonomia vs. anxiety or PTSD vs. “true” mental illness. In this one, the author felt that the only way to express how life-altering it is to have ASD was to compare it to how life-altering it isn’t to have ADHD. The only way to gain acceptance for one type of neurodiversity was at the expense of another. The author stated their opinion that ADHD – while technically a form of neurodiversity – barely qualified for the category because it was simply an “accessory” diagnosis that could be “practically nullified” by treatment. (Yes, those were their chosen words.)