*Press it* Some days you burn it with fire and some days…

...it burns you with fire instead! If it isn't one spoonie nearly burning down her office, it's the heat from a heating pad causing a rare heat-related burn rash for another spoonie. Life is complicated enough with electric appliances + brain fog. Now there's another concern about the use of heating pads to be aware … Continue reading *Press it* Some days you burn it with fire and some days…

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Bombogenetics with a Side of Pie

Cross one random thing off my life's bucket list. For Pi Day this year, we were gifted with a snowstorm that shut down the city for 36 hours (including leading to the cancelation of an Improv show I would otherwise have been in, boo!). The whole city - at least those in it who had … Continue reading Bombogenetics with a Side of Pie

*Press It* Zero Visibility a.k.a. Brain Fog

I read this post less than four hours after I wrote a post that included the line, “I bet fibro can make you faint, too.” Well, per this symptom list, it absolutely can. I procrastinated like the ADHDer I am in reblogging this, but I felt the timing was too coincidental not to share.

Crafts, Chronic Illness, and Adulting

One of the most amazing things about the human body is its ability to adapt and overcome, especially with chronic illness. In time your brain leads you to believe that most of your symptoms become your new ‘baseline’ (as I call it), because let’s face it, it’s not really your new ‘normal’. Cognitive impairment or ‘brain fog’ as it’s more commonly known, likely has you pulling out your list of symptoms at every new doctors appointment ensuring you don’t forget your new baseline symptoms. As you nervously go through the list the doctor is likely looking at you as if you’ve seriously got to be joking.  I found this ME/CFS and Fibromyalgia handy dandy symptom list and took the printed version to my last appointment (crossing out the 14 out of 144 items that didn’t apply to me). The doctor looked it over in front of me and then looking at me straight faced said, “You can’t…

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POTSies Against Nazis

I have a colorful new diagnosis. (I also have gastritis, probably as a result of being allergic to everything.) I'm not inflammatory (IBD), but I'm pretty salty. Postural Orthostatic Tachycardia Syndrome (POTS) is a type of dysautonomia officially characterized by a heart rate increase of at least thirty bpm upon standing. This tachycardia is often associated with a … Continue reading POTSies Against Nazis

Subway Sociology #1: Showing Ini-$h*!-ive: Business Meetings with IBS and ADHD

I just came back from a business meeting in another state. A small group of us went. We stayed at different hotels, and we agreed to meet up half an hour before the meeting to make sure no one was late. The meeting was in a city with good mass transit, so my boss encouraged … Continue reading Subway Sociology #1: Showing Ini-$h*!-ive: Business Meetings with IBS and ADHD

Trying to Knock Out Stigma and Getting My Ass Kicked Instead…

People have been following my blog! That's awesome! My readers rock. Seriously, I have some impressive readers. Biologist painters, medical doctors with a gift for photography, C-suite women who raise beautiful kids, and readers who know how to describe psychological phenomena more vividly than I have learned in years of therapy. What would my therapist say … Continue reading Trying to Knock Out Stigma and Getting My Ass Kicked Instead…

So that’s how much pain I’ve apparently been in…

I have an unhealthy tendency to discount my own pain. I've had migraines for most of my life, but I still have trouble feeling I deserve to take care of myself during them. I still feel guilty anytime I don't just "power through" the pain, and I still feel guilty calling myself a spoonie when I … Continue reading So that’s how much pain I’ve apparently been in…

Trust and Mental Health Treatment (Part 2): Dropping the F(ibro) Bomb

I may or may not have fibromyalgia. Or maybe I should say that I have fibromyalgia if I accept the diagnosis? That will maybe make more sense - well, maybe make some sense - after I explain, hopefully? Honestly, if it ends up making sense to you, readers, please let me know. I'm still confused! … Continue reading Trust and Mental Health Treatment (Part 2): Dropping the F(ibro) Bomb