Career lessons for the chronically ill: Write out your routine in your planner, including basic self-care essentials like physical therapy and tracking water intake and medications, alongside your work deadlines. It's a nice little shot of dopamine to cross off basic self-care tasks in your planner, and it helps with managing energy levels at work. … Continue reading Where’s Whoopsie #20: Snow Wrist
Things that went through my mind in the process of composing this week's blog post: To Partner: "We need more of those crushable baking potato chips that are not potato chips..." Hey, there is an entire site devoted to logging prior weather in the U.S.! Someone anticipated the deep-seated need of the ADHD community for … Continue reading Crushing it
My Partner and I are going to a game night tonight hosted by someone I met through an ADHD support group. So, of course, I had a dream that the hosts kept serving me party food on real plates, and I kept progressively dropping them. I desperately tried to explain, "Please stop giving me nice things. … Continue reading Written on the Prophetic Plates?
*Knock knock* "Who's There?" "Wobbly" "Wobbly who?" "Wobbly out in this weather when I know I will fall over? I'm very dedicated to my art, ok? Now offer me a seat on this train before it's you I fall onto..." Amtrak preemptively canceled some Acela routes and other regional commuter routes in advance of the … Continue reading Improv #13/Subway Sociology #4: Party Poppers
People have the strangest reactions to learning about Ehlers-Danlos Syndrome. So, telling them about it when you are already socially awkward quickly becomes a study in ridiculousness. For instance, I got to have that discussion recently with my hair stylist. It ended with me jumping up onto things alongside the majority of the salon staff. … Continue reading Striped Girls Can Jump?
Did you know that the term procrastination comes almost directly from the Latin procrastinatus? This is relevant because I have a new blog page on my main site that does not have a Latin title. This pains my Partner deeply. I think it pains my Partner almost as much as typing pains the hands of … Continue reading Procrasti-Not-Us
Ehlers-Danlos is a systemic disorder. That clearly means it can affect any part of our body that either has collagen or relies on collagen. This is rather unfortunate, given that about 30% of the raw protein content in our bodies is made up of collagen. Collagen is in everything: our stomachs, our skin, our ligaments, … Continue reading Eye Rate
I feel betrayed. I've just learned for the first time about some truly "behind the back" behavior. I don't mean anything from the 9th Circle of Hell, workplace bullying or even America's President being a traitor - those are all sufficiently terrifying betrayals, but they are hardly newly discovered - but rather something that has … Continue reading Behind the Back Behavior
Warning: heavy material ahead. No, not a content warning. (If you want that, see Pt. 1). Though, I suppose the book has some of that in its characters' backstory. I literally mean heavy subjects ahead. For anyone who is super adept at remembering my life: Why? It's not that interesting? Can you please teach me … Continue reading Heavy Subject Matter (Pt. 2: Physically Heavy)
...it burns you with fire instead! If it isn't one spoonie nearly burning down her office, it's the heat from a heating pad causing a rare heat-related burn rash for another spoonie. Life is complicated enough with electric appliances + brain fog. Now there's another concern about the use of heating pads to be aware … Continue reading *Press it* Some days you burn it with fire and some days…