Pokemon Go had a super event this weekend, in which all their previous special events were combined. Increased spawn rates for all prior Community Day Pokemon were available all weekend, but, within the weekend, there was one three-hour period wherein all the prior Community Day event bonuses (including double candy and stardust) were also available at once.
Because it is winter, everyone is sick, and I’m still destined to catch every acute illness that I am ever exposed to, I was getting over being sick and the concomitant flare this weekend. I was aware of the spoon cost to participate fully, but self-care sometimes means caring for my mental health even when it costs my physical health.
I’ve considered mobility aids before. There’s probably some residual feeling that I’m a pretender who doesn’t deserve one wrapped into my prior avoidance. It’s hard to get over a lifetime of ignoring your own needs because someone else has it worse. Mostly, though, I haven’t used one because I haven’t seen how it would help.
All the canes I’ve ever been exposed to are sturdy, wooden things that have to be held onto like an umbrella.
Did you know that the term procrastination comes almost directly from the Latin procrastinatus?
This is relevant because I have a new blog page on my main site that does not have a Latin title. This pains my Partner deeply. I think it pains my Partner almost as much as typing pains the hands of someone with Ehlers-Danlos!
My Partner pointed out recently that the saga of the 9th Circle of Hell has probably become so complex that any potential new readers will have a hard time figuring out what the heck I’m talking about on a weekly basis. (The bully-in-my-brain, of course, immediately added: “even more so than they would normally have difficulty just in understanding the ramblings of someone with ADHD with pronounced hyperactivity alone.” Thanks for that, brain.) I replied that I actually take great pains to try and link at least the most proximally explanatory blog posts, so readers can catch up if they want.
He then pointed out that that effort probably costs me more in hand cramps trying to back-link enough blog posts each time I write a new one to make my story make sense to new readers – and to those of my readers with brain fog in general – than it would to just maintain a dedicated page. Because he is sensible – and my hands really could use the rest – I followed his advice.
I created a Glossary of Terms this weekend. It should contain all the key descriptions needed to understand my rather topsy-turvy life. My Partner desperately wanted me to call it the Dramatis Personae page – because Latin is awesome – but it turns out that I write a lot more about places than people, with the possible exception of him. I claim it’s because I respect the privacy of others whenever possible. It might also just be that I am socially anxious and don’t have a lot of close in-person friendships…
Either way, I couldn’t justify the Latin page title. And, the effort to create that Glossary of Terms seems to have sapped my creativity to write another blog post this week. I’ve been procrastinating long enough that I now concede that writing a blog post telling readers to read my not-a-blog-post will probably be my only post this week! But, that confession at least does allow me to honor my own and my Partner’s creative styles and kill two birds with one Latin pun title. (I hope my Partner is pleased.)
I think my brain has struggled to write another post this week because it thinks it already has written one. It turns out there are enough “Easter Eggs” in the Glossary of terms – including how I got the pseudonym Lavender, an introduction to the not-horrible therapist whom I keep claiming I will write something about someday, a new Where’s Whoopsie, and even a link to the very first piece on mental illness that I technically ever wrote – to maybe back-justify that I even truly did kind of write an original post. (The aforementioned Easter-Egg article was written on a whim for the same reason I started my blog. It technically was posted on another blog two weeks after I started my own, but I wrote it first and submitting it probably also helped inspire this blog. But, I – in true ADHD fashion – kind of forgot that it existed at all or that at one point I was open to maybe trying to guest post on other blogs eventually. Oh, well. My life is too complicated to need anymore rejection therapy right now.)
Have a look at my Glossary of Terms and hopefully learn something new about me. I’ll write a real post next week, I promise! (Though, at least on the plus side I’ve actually managed to be more productive working from home. Not having to see my bully-of-a-boss on a daily basis at least reduces the amount of time I spend frozen in panic unable to even start a project for fear of him already despising it.)
I am not saying “B is for Bedbugs,” because supposedly things are “happening” with that. The home is hiring a new exterminator to come tomorrow and – again supposedly – is going to deal with the code violations that resulted in the scary green notice. I’m not sure how much faith I have in either of these things, but there’s not much I can actively do until I’ve given them a chance to fail all on their own.
Having learned entirely too much about what to do to keep bedbugs out even before an exterminator comes by when a complex I lived in during graduate school got them – and finding the agency rather lackadaisical about learning from my lived experience – I’ll share it with you all. Food-grade diatomaceous earth lining the walls and furniture is a great way to stop bed bugs and other nasties from getting in if the neighbors have an infestation. It’s also a cheap and surprisingly effective after-care product once the exterminator does treat. I did my research as soon as I discovered my neighbors had them, bought that, and was the only person in a ten-unit apartment that didn’t get bedbugs back in the day. I don’t think it was strictly allowed by my lease to do my own treatments, but at the time management didn’t care since it worked.
There’s no point in putting it down in my sibling’s room until the infestation is handled with entomological nukes first, but I keep hoping the agency will at least allow me to do the same after-care measures for my sibling’s room later. I’m not quite daring enough to just do them anyway as I did in grad school, because I’ve seen agencies use any technicality to boot someone, they barely wanted someone with a trauma history to begin with, and there aren’t really any other openings.
So instead B is for Blog Awards like C is for Cookie. If I have an enforced sit-on-my-hands week, I probably should get back to that “mental health sabbatical” portion of my not-FMLA. I’m hoping to do some baking. Baking too often seems incredibly overwhelming and not worth the spoons when the world is falling apart. But, I’ve always deeply enjoyed it when I can manage it. My original “balanced scorecard” included playing with inventing recipes as a thing that made me feel more like me.
Today’s other balanced scorecard questions are courtesy of Fibronacci:
“Dude, you can’t fool me. I know there’s only seven of you. When I’m seeing eleven then maybe I’ll believe I’m as think as my friends drunk I am. Now bring me my black coffee and tylenol delivery stat!”
There’s an Improv game called Five Things that seems to be fairly universal. The basic gist is that you sing a little song and then ask the person next to you on the spot to come up with five (or seven, or eleven or whatever arbitrary number) of a certain category. It’s a warm-up game to get you thinking in odd ways.
It’s also a song that will lodge itself into your brain forever. If you don’t believe me, watch here. You get bonus points if you stay on beat and/or come up with wittier or more advanced versions for your answers. For instance, to start you might ask for five types of vegetables and only be able to think of “potatoes, carrots, peas, turnips, and celery.” Later on, you might get a little more inventive: “Mr. Potatohead, Veggie Tales, Carrot Top, The Jolly Green Giant and Sweet Pea.”
I do not seem to have self-care lodged in my brain in the same way. Between the double-vision fiasco, being mentally frozen in the 9th Circle of Hell and general ADHDness, I have been kind of terrible about my self-care this past month. (Don’t worry! No real alcohol or mind-altering substances were involved in my lack of self-care. Line games are just things that have also become permanently lodged my brain.)
Ehlers-Danlos is a systemic disorder. That clearly means it can affect any part of our body that either has collagen or relies on collagen. This is rather unfortunate, given that about 30% of the raw protein content in our bodies is made up of collagen. Collagen is in everything: our stomachs, our skin, our ligaments, our muscles, our blood vessels, and even in our hair. While I don’t think this quite means we can literally say our hair hurts, it does seem to mean we can literally tear our hair out over it. I somehow manage to both grow ridiculously thick hair and lose so much of it that my Partner claims he could build another me from what gets stuck in our drain catcher. Others lose as much as I do, but without the thickness to begin with. They get to deal with visible hair loss as a result.
Another place that collagen is found is in the eyes. My family’s genetically atrocious vision and need for prism in our glasses are quite likely manifestations of EDS. I learned this the hard way this week.
You’ve probably already picked up on that by now, but just in case you haven’t, telling you my Partner and I have been eagerly anticipating the Pokemon Go Community Day with abundant tyranitars for weeks now probably confirms it.
Today was a rare good day. We went to one of the biggest parks in our city. We each managed to collect enough candy to evolve multiple tyranitars, and we participated in some rare legendary raids with enough people to actually win (even though we *cough* don’t have enough friends to field a team outside of these community days due to *cough cough* social anxiety). We both even managed to get high-level shiny tyranitars to evolve. (It seems only fitting that someone with ADHD – stereotyped as “ooh, shiny” – should need shiny pokemon). My spoons did give out before my phone battery and the event did, but with appropriate planning for water, meds, rest breaks, shade and cooling aids, I lasted longer than I expected to. The heat and sun weren’t unbearable, and we stopped for burgers and ice cream sandwiches in the A/C when I needed to rest.
CW: Indirect descriptions of PTSD symptoms, the aftermath of trauma, and workplace bullying.
Have you ever wondered what a zombie with an office job would look like? If you’ve heard Jonathan Coulton’s excellent “RE: Your Brains,” you don’t have to ask. If you haven’t, I do suggest you listen to it eventually, but there’s no rush.
There is an inherent contradiction that I have noticed in a lot of workbooks, apps, and other tools for mental and/or physical health. The tools themselves require a tremendous amount of attention to detail, dedication and memory for recording precise events at precise times. If those things were intuitive for me, I wouldn’t need those tracking and reminder apps in the first place!
It’s a great idea – in theory – to record every time I feel triggered, depressed, light-headed or aching, then to write down which techniques I tried to address the problem(s) with a corresponding 1-5 Likert scale rating of how much symptom reduction I obtained from them. I’m a data nerd by nature, but I also have ADHD. I need the tracking to be easy to do, work in multiple environments, and to provide handy visual data aggregations to make sense of the trends. I create those types of data visualizations every day for my job, but I do not have the time or spoons to take on a second job doing my day job again on my own time for my own health! If someone wants to pay me to create the world’s most perfect health tracking report, great. Until then, I just want technology to do it for me!
Warning: heavy material ahead. No, not a content warning. (If you want that, see Pt. 1). Though, I suppose the book has some of that in its characters’ backstory. I literally mean heavy subjects ahead.
For anyone who is super adept at remembering my life:
Why? It’s not that interesting?
Can you please teach me how?
I need a journal to remember what happens to me on a Tuesday. Seriously, there’s a little journal in my Health Storyline app entitled “Things that Happened Today.” I need it.
But, if you do remember my life, you may remember that I was recently diagnosed with EDS. I also wrote about how challenging it is to remember what I read in books. This is unfortunate because I’m having a particularly hard time getting through Oathbringer by Brandon Sanderson. It’s a good book. It’s a good enough book, in fact, that my Partner wanted to read it, too, and he rarely reads fiction books. The fact that he also wanted to read it means that we bought it in hardback. He is weirded out by Kindle books.
We bought it the day it came out. He finished it shortly after that. I’ve been struggling since then. For anyone keeping count, the book came out almost six months ago. Partly, I’ve been struggling because of my brain fog and a need to go back and refresh on sections whenever I set it down for a bit. But, there seems to be something more. It is more than just more than mentally taxing to read that book.
CW: This title was meant to be humorous, but what I wrote initially didn’t end up humorous. The title became both a play on words and not one simultaneously. I did what I did the last time I tried to write about one thing but ended up writing about another. I split the post. The parts where I reference things going on with a family member may not be suitable for those who are vulnerable in their mental health to read at this time. Feel free to skip this post if necessary. There is a Pt. 2 that reflects the more banal slice of life to follow. I’ve mentioned before that I am experienced at living with the dichotomies, so both parts of the post are simultaneously true. I’m both having a rough time and still myself, you know? I still struggle one night and go to Improv another. It’s how I (mostly) maintain my mental health. I don’t apologize for that self-care. (I don’t. The bully-in-my-brain doesn’t technically apologize for the humor part. Just for the rough part. A$$hole.)