Long Walks and Candlelight Zen-ers

I sometimes think my Partner missed his life’s calling as a therapist, but whenever I mention this to him he reminds me that the only “people” he wants to be observant of and “people” with on a regular basis are me (and maybe the cat, who is unofficially a “people,” too!)

As I’ve said before, my Partner was instrumental in helping me to identify that my “personal flaws” were really indications of ADHD, in obtaining my formal ADHD diagnosis (functioning as my “family” interview in lieu of my family of origin, who should never be trusted to speak on my behalf, ever) and also helping me come to terms with the idea that having ADHD, which is sometimes classified as a “learning disability,” doesn’t invalidate my elite school undergraduate degree or the grueling work I did to complete my thesis. In fact, we largely worked out that ADHD was even something to consider because he read an Atlantic article about an Ivy League-graduate female writing about her experiences, handed it to me, and went, “That’s you, and before you freak out, note the ADHD didn’t mean she didn’t graduate from a top tier university and work for a competitive magazine. So, it doesn’t mean you are stupid at all.”

He has never really stopped knowing me better than I know myself since that first insight. He worked out a lot of my personal trauma history from context clues before I ever felt comfortable sharing it (or even acknowledging to myself that those experiences “qualified” as trauma.) He also originally came up with many of my core grounding techniques. He’s the one who worked out, for instance, that stating the date and time isn’t as effective as one might think during a dissociative episode for someone who also has ADHD, as even when I am completely “in the present” I am often still completely obvious to the date and day! He’s the one who suggested instead simply saying, “You are here. This is now.” And – when I asked him in 2018 what the point was of reminding myself that it was the “here” and “now” (date non-specific because I wouldn’t have said any date in childhood, so if I’m saying anything at all, it’s already not childhood) when 2018 was so damn close to those other childhood and previous 9th Circle of Hell adult trauma memories that it felt indistinguishable – he is the one who calmly replied, “This year is shit. It’s 90% the same shit as the shit you’ve been through in the past. But, that makes it even more important that you remember that it is, at the same time, still 10% different shit. If you must live through current trauma, don’t torture yourself further by also reliving your past similar trauma all at once.” ADHD all-or-none non-linear conceptions of time do me no favors on that front.

He’s the one who came up with the idea of wearing beaded bracelets, keeping a reality journal, and recording my own “guided meditations” in safe, happy places to remind myself that happiness is possible when in the depths of Hell. I still fill out my reality journal daily. I still wear beaded bracelets and remind myself that, “You are here” and “This is now.” And, I still struggle with feeling triggered – without necessarily confusing whether I am actively safe for the moment – because traumaversaries are a thing.

Standard therapy for trigger management, dealing with emotional flashbacks and grounding bugs me for multiple reasons. The biggest reason tends to be it always starts from the assumption that a person is safe in their present. That was not the case for me in 2018, and it is not the case today for many others who are suffering from complex PTSD and/or dissociation while simultaneously living in poverty, chronically ill, of color in an intolerant neighborhood, disabled and/or still too young to live independently to escape their childhood abusers. It is entirely possible to have PTSD while still also being actively (re)traumatized.

Another thing that bugs me is that grounding techniques tend to be very one-size-fits-all. The same techniques are recommended whether a person is currently experiencing an active mental health crisis, engaging in day-to-day mental-health management, or “just” feeling a bit more triggered than normal because of a traumaversary. I don’t understand why therapists assume that engaging in the same things that grounded me in 2018 – the big guns of my mental health management – couldn’t actually re-trigger me back to those unpleasant memories of why I needed those big guns if I used them again in 2019 – especially if I’m trying to use them to stop thinking about 2018 to begin with.

Yes, my beaded bracelets were “new” in 2018 compared to prior crises, so they were helpful for grounding last year. And, yes, I’ve gotten used to wearing them, and they remain a useful societally acceptable wearable fidget in 2019. But – since I was wearing beaded bracelets on my worst days in 2018 as well as my best – they no longer quite distinguish between the 2018 “then” and “now.” I said, “You are here; this is now” in 2018 as well as in 2019. So, that too, can only remind me that (at least) I am no longer a child and that I have adult options – but it can’t distinguish this year from last year. My reality journal is great for identifying why I feel triggered in 2019 seemingly out of the blue, and it is great for day-to-day maintenance. But, it also isn’t enough by itself for a traumaversary. None of my daily maintenance tools by themselves are enough.

Yet, I simultaneously wouldn’t want to haul out my biggest guns – such as my personalized guided meditations – for anything other than a true crisis. I don’t need to be reminded that a place outside of Hell exists and that happiness exists in 2019 the way I did last year. I’m present enough, even when feeling floaty lately, to still know that I’m generally happy and that it’s weird that I’m feeling something in my body that doesn’t match my mind or my external circumstances. I just need a little boost because my nervous system sometimes decides to hijack that happy brain for a bit.

Most grounding techniques don’t seem to consider the different tiers of grounding-type interventions that might be required for different circumstances – or different years or times of years – at all. And – despite the years of therapy and all the many books on complex trauma, dissociation and social justice that I have read – in the end it still ended up being my Partner who realized that tiered interventions might be required in self-care, just like tiered interventions are common in acute care.

Continue reading “Long Walks and Candlelight Zen-ers”

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Blog Awards Series #6/Improv #17: They Say It’s Your Blog Award

ADHD Storytelling
<Image Text>: Non-ADHD Storytelling = start-of-story to end-of-story. ADHD storytelling= takes every detour and side tangent possible!

ADHD is known for “all or none” thinking, which also translates to “out of sight/out of mind.” It’s basically the reason our infamous desk piles are productive for us. If we put something away in a “safe spot,” we’re guaranteed never to look at it again!

The right amount of color in an organization scheme is similarly distinctive, but, if I color coded everything in my Passion Planner by its due date, as the true bullet journal fanatics will, then nothing would ever be urgent because everything was. In the end, I have two highlight colors only: blue for “due by end of the week,” yellow for “due by the first couple of days of the new week.”

Thanks to histrionicbutterfly of Life As Me, I was reminded of an obvious fact I had still managed to completely overlook: this kind of out-of-sight/out-of-mind” and “all-or-none” thinking can occasionally be neuroprotective. The easiest way to avoid difficulties from two masks falling off when trying to wear them simultaneously is to only ever wear one at a time in the first place! I sent my Partner off to entertain the grandparents-in-law and “revised” my call time extra early. Between not having to put on my “dealing with family is still scary” mask at all and the fact I am still photosensitive and can’t actually make out the audience behind the stage lights even when I want to, it felt like performing normally. I was happy with how the show turned out.

The only thing I was disappointed by in the show was that we didn’t get to play a game called Lyrics Only, which is exactly what it sounds like. Performers must run an entire scene speaking only in lyrics from songs as their answers. I love word games in Improv generally, but I am usually less fond of that one – not because I’m terrible at it in absolute terms, but because I’m terrible at it in relative terms.  The audience connects best with lyrics from popular songs, and my musical tastes run a few generations too old for my audience (and me, by my age alone.) The audience usually can tell they are lyrics but don’t quite know the songs to truly appreciate them because they can’t mentally sing along. However, since I usually have the lyrical stylings of someone’s grandmother, I was hoping that I’d get to trot out this “relative” strength the one time I had honest-to-goodness relatives of appropriate age to appreciate in the audience. Alas, it was not to be.

But, overall, things went well. However, “going well” still meant far more “peopling” than I am used to. I’ll write more next week, but for this week I claim the “peopled out” privilege. I also haven’t forgotten that this week remains the week of the b-word that shall not be named and also the one-year anniversary of the most recent reason why that date continues to live in infamy. I did seriously look into taking the advice of another blogger, Vixxy Rose of Crazy Little Things and renting a rage room to “celebrate” that fact, but it seems that the idea is too popular for its own good. The one that would be nearest to me is closed for the next few months while it remodels to accommodate the “unexpectedly high demand!” (Though, when it reopens, it will, I note, let me pay extra to smash some unwanted mementos of my own to my own custom playlist for a little extra. I briefly wondered what soundtrack could ever accompany the 9th Circle of Hell, then realized I had already unintentionally created one in the form of my Zombie Apocalypse playlist from last year.)

Since I can’t go apocalyptic on any remaining evidence of the last year, I guess I’ll fall back on another old standby for this week for when I want to be an introvert for a week but still post something  remain balanced during a frustrating anniversary. I’ll respond to a blog award! This week’s episode is graciously provided by justsaltwriter

Because I’ve got lyrics (or rather, the lack of the chance to enjoy them on either stage or smash) on the brain and also because the ADHD brain – in addition to being all-or-none – has a tendency to take a very generous interpretation of what qualifies as necessary and sufficient for appropriate storytelling, I’m going to answer all of the questions in the form of Lyrics Only. Why? Because a ) it’s my birthday blog award and b) I have expended more spoons than recently than usual trying to rein in my tangential ADHD storytelling tendencies to play tour guide in a way that doesn’t literally bounce between three centuries of colonial American history within five minutes – with a dash of subway sociology thrown in for good measure. I’m letting my tangential flag fly here in recompense.

Continue reading “Blog Awards Series #6/Improv #17: They Say It’s Your Blog Award”

Improv #16: Demotivation-in-laws

*Knock knock*

“Who’s there?”

“Demotivation-in-laws”

“Demotivational who?”

*Slowly* “No, Demotivation-in-laws”

“Oh, Then, I guess I heard you correctly the first time. I was just kind of hoping I was wrong…”

“Surprise! We are here to support you!”

*Slams door in faces*

Things to know about rejection sensitivity in ADHD: 1) We’re sensitive to both real and perceived rejection. For instance, we’re sensitive to rejection even if it’s explicitly been established that the insults are a part of a comedy bit. 2) We’re also entirely capable – and probably most adept out of anyone – of triggering our own RSD spirals. Since I also have Ehlers-Danlos Syndrome, I’m pretty sure I can claim I am adept enough at self-sabotage I could literally shoot myself in the foot with both arms tied behind my back (and maybe both feet, too, while we’re at it!)

Don’t believe me? I was once in a scene wherein the first actor entered the scene with arms outstretched to indicate he was a wall poster in an office building. Since effective scene painting is all about symmetry, I then had to keep my arms stretched out at my side when I also came out to play a poster. We were “demotivational posters,” so while other players acting as office workers read sweet affirmations about kittens hanging in there on our imaginary pages, we were secretly mocking them and sharing their darkest secrets. We’d whisper in their ears and make them think that their officemates were the ones insulting them. Finally, the humans in the scene got wise to us and started whispering insults back at us, making us turn against each other in our poster posse.  One of the insults whispered at my poster was that it smelled stale.

This was directed at the poster itself, but I was at that moment standing there with both my arms out at my side while in real life someone was technically sniffing me. On the one hand, individual improv scenes only last around 1-2 minutes per scene on average, so even though I wasn’t in the most comfortable position for a spoonie, I hadn’t really been hanging out there long enough to be sweating in a gross way yet. Or, you know, so I told myself. On the other hand, we were about halfway through the set. Rejection Sensitivity meant I still felt anxious for the rest of the set until I could dash off to a bathroom and sniff under my armpits. Just in case the last insult had been directed at me, not the poster I was portraying.

Things to know about my birthday: Nothing at all, preferably. It’s very demotivating all on its own, and I’m quite comfortable pretending it doesn’t exist. Frankly, I’d be ok with excising the entire month of May from the calendar, just to be thorough.

Things to know about my family of origin: They engage in enough real rejection that they make my own attempts at self-sabotage look like amateur hour. I’m not exactly grateful for my family’s utter indifference. I’m human and I sometimes wish that I had the kind of relationship with my remaining blood relatives wherein I’d be embarrassed to be receiving flowers after a performance and/or wonder if they were just telling me I did a good job because that’s what families are supposed to do, even though I actually sucked. I also occasionally wish I’d had the kind of family that had taught me certain social scripts like that I should remember when Mother’s Day is (today, for anyone who has parents – or in-laws – that they care to call before the day is up!) or that I should let someone else know if and when I get into a car accident in a foreign country.

But, that’s not the family I had, and, well, that’s a relief sometimes, like when I do want to perform in public. One of the few upsides to a family that doesn’t care that is that I have never had to worry about my RSD tendency to panic spiral whenever people I know are watching me at improv. My Partner doesn’t trigger that kind of spiral (*cough cough* anymore, at least most of the time), and nobody else has ever watched me. I am incredibly socially awkward around small groups, feel that way about my own teammates watching me, and can trigger my own RSD spirals about my performance (or just about anything else!) But, I am pretty much okay with big faceless audience masses who don’t know me personally – and never will – watching me. If Lavender sucks on stage but nobody ever actually knew her name, then it isn’t a permanent indication of her worth, or some such. The primary trigger of any of my current performance rejection spirals is thus me. And, I can (with a dash of “clinical strength” deodorant just in case I get sniffed on stage again) mostly manage my own demotivation.

Things to know about my in-laws: 1) They don’t know any of the things above about me.

Continue reading “Improv #16: Demotivation-in-laws”

Work/Life Int-egg-ration

I used to think my boss’s term for work-life imbalance was something he made up. I don’t know why I thought this, other than that he always said it so confidently and without attribution. I’d never have had the confidence to pass off a saying that often without crediting the original source, so I just assumed. Thus, I figured I could never share it on my blog because it would be too personally identifying. I don’t know why I never just googled it. If I had, I’d have established long ago that the term isn’t something he came up with. He cribbed it from a Forbes article – or possibly Berkeley’s MBA program – and just takes it to illogical extremes.

Why should I have assumed, given that he liberally borrows his own employee’s work at conferences without remorse, that he’d somehow do otherwise with awful aphorisms? (Of course, the way he adds on that we should all be so grateful for our “fulfilling” job that we are willing to work many nights and weekends to hit our growth goals even as he screams at us might be considered ‘original!’)

There are two kinds of people who live permanently only in the “now” or the “not now.” Time blind ADHDers – and bully bosses. How does one tell the two apart? Well, in my experience, folks with ADHD will inevitably blame themselves for any missed deadlines or forgotten important project components – usually to the rejective sensitive extreme – while self-absorbed bosses will simply assign major deliverables with less than twenty-four hour notice to employees whenever they suddenly realize that they actually need something for a conference that they could have requested weeks ago if they cared at all about the “life” part of “work-life integration.”

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Subway Sociology #6: I Seat Drunk People

Did I ever mention that I am an irony magnet?

This is an important baseline state of reality to establish for new readers who might otherwise question how my Partner and I, specifically, ended up being the second and third of (hopefully only) three residents of a large urban city stuck explaining the intricacies of Pokemon Go to a drunk “friend” supposedly hiding from his “ex-girlfriend” at our table at Shake Shack while thousands of gaming confederates across the country caught their Bagon unaccosted during Community Day.

Since that drunk “friend” specifically requested “cover” while he snuck away to the nearest subway entrance, our experience thus represents the sixth valid trial of my subway sociology experiment. My original hypothesis was that the line I take to improv is statistically “weirder” than nearby lines. My current tally of blog-worthy baffles runs 4:2 in favor of the line in question. Suggestive, but not at all statistically significant, especially when properly controlling for my own frequency of line ridership.

My Partner, however, wishes for me to note that I have potentially overlooked two additional hypotheses worthy of testing: a) my irony magnet superpowers extend to subways and b) there are statistically higher rates of oddball experiences on all subway lines (as well as in general) whenever I am nearby. He pointed out that my having previously mentioned hydration drinks being advertised on public transit as hangover remedies without actually describing any real-life interactions with their target audience could be construed as daring the universe to offer me up a live specimen. Irony. Magnet. (He also suggested, after he had finally forced our “friend” out into the wilds again, that I should refrain in the future from being the one to nab seats for the two of us even in a crowded fast food joint well over its listed capacity of 131 people. The risk of my irony powers kicking in is just too high whenever I’m talking to strangers for even a minute…)

Continue reading “Subway Sociology #6: I Seat Drunk People”

Read Bad Books

Why do Targaryens make terrible stockbrokers?

Their assets always end up in a fire sale!

I am no longer sure I’d call anything George R.R. Martin writes “good.” He burned some bridges with this leal reader with Winds of Winter. I finished a real-life Ph.D. with ADHD in less time than it has taken GRRM to write one book. I’m more than fine with HBO scripting the only conclusion to a Song of Ice and Fire to ever see the light of day. At least it means that there will be a conclusion. There is, however, still something disheartening about getting most of the way through the book GRRM wrote instead and realizing he only covered the first half of 300 years of Targaryen history. Fire and Blood: 300 Years Before Game of Thrones (a Targaryen History) is an epic monument to paid procrastination and GRMM still couldn’t even finish it? Really?

That is…disappointing. Especially given the fact I am listening to the prequel on audiobook, and it is 26 hours long! I’ve been encouraged by my neuro-ophthalmologist to rest my eyes when I don’t need them for work because their ability to focus together continues to decline. Thanks, Ehlers-Danlos Syndrome. Listening to GRRM’s words instead of reading them makes certain quirks of his writing almost painfully apparent. (I wonder if his editors were equally burned by this point and so desperate to ship anything new of his that they only gave Fire and Blood a minimal once-over?)

Three-quarters in, I’m not sure from a literary standpoint whether Fire and Blood is actually well-written.  It overuses words. Like, seriously overuses them. Like “overuses them so much that it has become a game for my Partner and me to take a non-alcoholic drink every time he uses the word ‘leal.'” (GRMM is obsessed with loyalty, but our ‘drinking’ game has to be non-alcoholic because I’m pretty sure we’d both die if we tried to use alcohol during the playing of The Leal Deal. GRRM has singlehandedly ensured that even this girl who is dysautonomic has consumed many more than her recommended liters of water daily this week.) It also has an annoying habit of setting up mysteries that are never resolved. “What was in that letter” will never be known to readers. I’m fairly sure GRRM knew what was in the letter – it’s his imagination after all – so would it have killed him to tell us? What does playing coy accomplish in a one-off?

I am not sure, for these reasons, whether what I’m currently reading is actually good. I am sure, however, that admitting I’m reading it is, at least, not embarrassing. That is not true of many of the other books I have read over the years.

Continue reading “Read Bad Books”

Where’s Whoopsie #20: Snow Wrist

Career lessons for the chronically ill:

  1. Write out your routine in your planner, including basic self-care essentials like physical therapy and tracking water intake and medications, alongside your work deadlines. It’s a nice little shot of dopamine to cross off basic self-care tasks in your planner, and it helps with managing energy levels at work.
  2. But, write all appointments in pencil because life is unpredictable. Sometimes you will, for instance, have to reshuffle an entire week’s predictable routine of physical therapy, actual therapy, meals and the like to attend a beneficial career training. It helps if you can erase to adapt.
  3. If and when you willingly disrupt your usual daily work routine to attend an onsite continuing education training that will likely make you more desirable to positive unpredictabilities such as career advancement in the future, suck it up and ask to take notes on a laptop. Planners can be written out by hand. Course notes cannot. DO NOT try to take notes by hand with a pen for two hours. It can – and will – destroy your wrists.
  4. If you ignore the advice in #3 above, at least do not further compound the problem by then attempting to write a full blog post within 48 hours of failing at the above.

I am guilty of #3 this week, and my wrists and hands are screaming at me for it. I will attempt to take my own advice and not also be guilty of #4. Full blog posts will resume as soon as my joints have forgiven me for thinking I could still take hand-written notes this far along in a progressive diagnosis. I couldn’t take notes by hand even back when I was still in undergrad. I don’t know why I forgot that fact during professional training this week?

In the meantime, have a picture of Ehlers-Danlos Syndrome. It is, after all, the reason (alongside Rejection Sensitive Dysphoria and a bully-in-my-brain that still feels toxic shame over asking for accommodations like using a computer instead of just taking hand-written notes like everyone else. The Evil Queen has nothing on the bully in my own brain.) I should have just said I can’t handle hand-written note taking, even if the training did take place over a “working lunch” and most people were capable of balancing food in one hand and a notebook and pen in the other. I didn’t. Because toxic shame sucks…

See you all when I’m finished paying for that lack of self-advocacy. (The artwork, for anyone wondering, was created before the aforementioned overdoing it.)

EDS_WheresWhoopsie - Copy
<Image> The Evil Queen staring into her magic mirror. Magic mirror asks her whether she means the age a body looks or the age a body feels when she says “fairest,” as that distinction will affect its answer. In the second panel, a zebra’s ears are burning. The zebra wonders if it means someone is thinking about them or if it’s just a new symptom. <Image Text>: Ehlers-Danlos Syndrome: when your skin is as fair as Snow White, but the pain turns you into Grumpy Dwarf!

Need a recap of anything I’m talking about in any post? Check out the Glossary of Terms.

Where’s Whoopsie #18/Subway Sociology #5: Mixed Martial Arts

First, for those wondering. The bad news is that I don’t have a new job quite yet. The good news is that that is because the interview process keeps getting longer each time I go through it. I’m not finished with it yet, but I’m also not out of the running yet, either. There are more stages than I expected. I’ll be making that longer commute at least one more time before I can determine if I’ll be making it permanent.

I’ll use that “at least one more time” as a chance to gather more data for my current hypothesis that one particular section of the subway line that I would need to take as part of that new commute truly has a higher likelihood of entertainment value than the earlier sections of the same line that I used to take daily. I find that, including this post, I have now written about the actions of my fellow passengers – and/or other ads and experienced events – five(!) times. These points of data make a beautiful line (bonus points if you are now singing that song along with me), and, for a would-be daily rider who is also a data analyst, a beautiful new series for my blog. I’m retroactively subtitling the previous four posts about commuting “Subway Sociology” entries #1#2, #3 and #4.

One hypothesis is that this more-northerly-than-I-previously-commuted section of the line just has more interesting passengers in general. The null hypothesis, in turn, is instead that I have just needed more distraction from my own brain while riding this particular section of the subway – and thus have been more inclined to notice the fascinating actions of my fellow passengers while riding the rails – than while making other trips. I’ll need more data to truly determine, but, either way, my fifth unofficial/first official foray into subway sociology was a welcome distraction during what would otherwise have been a solid hour for the bully-in-my-brain to psych me out before my last interview.

It takes a lot of confidence to do anything other than stick headphones in your ear and avoid eye contact with fellow passengers on a subway. It takes a unique level of confidence to do double duty during your commute and incorporate your daily workout into it as well. Yet, one of my fellow passengers on the way to my last interview had the brass balls – er, brass bars – to do just that.

Continue reading “Where’s Whoopsie #18/Subway Sociology #5: Mixed Martial Arts”

Trust in Mental Health Treatment (Part 4): Choose Your Own Adventure

So, I potentially have good news. I’ve gotten to the final round of the interview process for a new job in my same city. It’s what I do now but with a different organization. I’ll update eventually whether I got the job, but talking about it right now feels a bit too much like tempting fate. I’m not a fan of pure CBT, but even I’ll admit I’m engaging in a bit of magical thinking by staying silent. I know, I know. However, PTSD and its sense of foreshortened future mean talking about anything positive that hasn’t happened seems like it will only make me look like a fool when it doesn’t happen.

I have no such qualms, though, about talking about my fears of what will happen if I get the job. C-PTSD is fine with that. The commute will be just far enough that I won’t be able to make it to my therapist during her normal business hours. She was able to do a limited number of phone sessions while I was in the 9th Circle of Hell last summer because she knew that was an active trauma crisis, but she can’t, unfortunately, do regular phone sessions. I’ll also have to go to trauma yoga on Saturdays instead of during the week. That’s…not terrible. But, it will mean a bigger class in front of which to modify my yoga-for-hypermobility. There will probably be social anxiety compared to the three people that regularly go to the class I currently attend, but I guess I can live. How unsettled I feel not being able to attend weekly therapy, though, is one reason why I never fully wanted to develop trust with a therapist in the first place. Not all therapists are the abuse-permitting social workers of the 9th Circle of Hell, but, in the end, they are all running businesses. They’ll only modify so much, so my brain (bully and other parts) says don’t depend on someone for whom helping me lasts only as long as I am convenient. (Alongside the issues I wrote about in the first three parts of this series.)

Forget attachment. I’m still a survivor of enough systemic abuse that I’m shocked I even got to trust with anyone who is part of a system. But, shockingly, I did, and I don’t see myself being the kind of person for whom lightning strikes twice. My therapist attempted to suggest there might be others closer to my potential new workplace whom I could trust, but she shut up quickly upon seeing my look. She then switched to, “Ok, I think you are strong enough that you could do more like once a month. I think you’ve been through enough with irregular support during the Crisis of 2018 that you can manage in 2019.” I’d be willing to take a half day to see her once a month during her hours. I’ll admit to being scared of tapering therapy, but not scared enough to contemplate finding another therapist. The legacy of systemic abuse runs deep, and the system she is in – and the others that both my insurances have covered for outpatient therapy – are really not trauma-informed. She’s the rare exception in a clinic I’d otherwise bitch about. (My psychiatrist, who is not necessarily trauma-informed for most but likes me, has Saturday hours. I could keep seeing him.)

I’d actively choose once a month therapy over trying again with anyone else. But admitting out loud that therapy was an important part of my support system during the Crisis of 2018 was terrifying. What if I’m not really strong enough yet to taper? Last year was pretty damn re-traumatizing.

What if I shouldn’t even be looking for a new job at all because I don’t have the spoons? The commute isn’t just too far to make therapy: it’s also a commute at all. I’m currently a remote worker, and that saves a lot of physical spoons. It doesn’t save mental spoons, though, I’m only a remote worker because I exist within a limbo wherein my boss finds me too useful to purge, but too much of a hassle to talk to.

When I started to panic-think maybe I should just stay with my current company, my therapist very quickly shut me down by reminding me how many of my boss’s communications she has read while I cried. As she has stated, she “can’t ethically diagnose someone” she hasn’t met. But, while she can’t speak clinically, she did suggest that I do some serious research into the various presentations of narcissism and think hard about why my current boss was able to trigger full-scale PTSD episodes when I still saw him in person. 2018 wasn’t the first time I had to testify to ongoing abuse in the 9th Circle of Hell. I testified against the Thesis Defense Rests Stop the same week as my thesis defense (hence the moniker). Yes, each successive trauma adds a straw to the camel’s back. But my boss…also reminds me of someone who abused me personally in a way no one outside the 9th Circle of Hell ever has in my entire life.

The day of my end-of-year-review – which perhaps I will eventually write about – was a perfect example of my the way my boss can start the day in such a towering temper I wonder if I will still have a job at the end it, but then whiplash to being conciliatory to the point he asked if I could use more physical accommodations. What changed in between? A combination of a) something I produced being very well received by clients on a call between the beginning of the day and my review and b) letting him take all the credit for it. With my history, my instinct is to roll over and hand off intellectual credit for anything I do to anyone who scares me because C-PTSD says “stay safe by staying out of sight.” That…works with my boss. It’s probably a big part of why I got concessions and the rest of my office got fired last year.

But, as my therapist notes, he exacts a cost in mental spoons that is likely more damaging to me than the cost of the physical spoons from commuting. It’s not generally a smart idea to work for someone who pings your PTSD to flashback to childhood abuse. Even if I hadn’t experienced childhood abuse, working for someone who can flip moods so drastically and so quickly is not a great idea, period. Nor is working for someone who has flat out stolen the academic work of all those who are under him in a field that typically recognizes subject matter experts as experts. There’s also the pesky fact that I still have the gut instinct that the company itself isn’t financially stable, and I could lose my remote job by 2020 even if I’m able to keep my boss perfectly happy until the day the doors close for good. I’d rather choose my own adventure now, while it still is a choice.

Therapists don’t usually tell you what to do, exactly, but mine seemed worried enough by the prospect that I’d not take a job if I got it because of the fear of losing one piece of my support system that she ended with “we’ll work out what happens with therapy, but I really don’t think you should trust your boss longer when you have another option.”

We’ll see what happens. I don’t know if I will know yet by next week whether I’m their final candidate. Whether or not I do, next week’s post will be a review of the strategies that kept me sane while testifying to abuses in the 9th Circle of Hell in 2018 without consistent access to therapy. Maybe if I write out what helped me then, it will help others unable to access good therapy now, whether because of a therapy break, because they only have access to those horrible therapists in their area that are the reason I’m so afraid of ever starting over with someone new, or because they can’t afford decent care. (The U.S. sucks at mental health, did I ever mention that?) And, maybe it will also help to reassure myself that I can eventually return to working in a real office – with its increased physical demands upon my EDS/dysautonomia – because the mental benefits from reduced anxiety, depression, PTSD and panic are worth it. Maybe it’ll convince me that I can be strong later since I was strong enough before.

Also, if I flat out state that I won’t be writing about what happened with the job next week, then perhaps  I won’t feel internal pressure to “follow up” with the “bad news” my brain thinks it will inevitably receive. I write a lot about failure on this blog, but I’m trying at least this week to tell myself someday I might also write about success.

Need a recap of anything I’m talking about in any post? Check out the Glossary of Terms.

 

Candy Canes

Image result for pokemon go pikachu santa hat
Image: Pikachu in a Santa Hat from Pokemon Go.

Pokemon Go had a super event this weekend, in which all their previous special events were combined. Increased spawn rates for all prior Community Day Pokemon were available all weekend, but, within the weekend, there was one three-hour period wherein all the prior Community Day event bonuses (including double candy and stardust) were also available at once.

Because it is winter, everyone is sick, and I’m still destined to catch every acute illness that I am ever exposed to, I was getting over being sick and the concomitant flare this weekend. I was aware of the spoon cost to participate fully, but self-care sometimes means caring for my mental health even when it costs my physical health.

I’ve considered mobility aids before. There’s probably some residual feeling that I’m a pretender who doesn’t deserve one wrapped into my prior avoidance. It’s hard to get over a lifetime of ignoring your own needs because someone else has it worse. Mostly, though, I haven’t used one because I haven’t seen how it would help.

All the canes I’ve ever been exposed to are sturdy, wooden things that have to be held onto like an umbrella.

Continue reading “Candy Canes”