Messages in a Bottle #13: Placebo Effects

lol - so true of periodic paralysis I Could Use A Standing Ovation, Could You? The Journey of An Anxious Girl: that's a pain in my ass
<Image Text>: Doctor says to patient, “You have an extremely rare, hard-to-treat disease. Are you trying to make me look bad?”

I bought pink Himalayan salt pills today instead of my usual generic salt capsales. I know some people think the “highest amount of trace minerals of any salt” are independently useful, but my default assumption is still that salt is salt. I have a scientific image to maintain at all costs, after all. My conception of myself as intelligent largely depends upon carefully managing my own treatment in line with medical guidelines gleaned from published peer-reviewed sources with a preponderance of evidence, etc. etc. etc.

I’ve been called stupid plenty of times in my pre-ADHD-diagnosis days, so even though I have an excellent track record of identifying what is going on with me and my sibling – even when the medical establishment itself is befuddled – I have only ever learned to (mostly) trust myself because I can always cite my sources. It isn’t just me claiming something is true, it’s “the literature.” The bully-in-my-brain is far harsher than any true academic peer review I’ve ever received. I can’t point to a pile of studies that suggest that one type of salt is better for dysautonomia regulation than another, so thus it isn’t. It could be the greatest thing, since, well, normal salt, and I would remain a skeptic until there’s been at least one meta-analysis.

I’m not buying the pink stuff because I think it will work better; I’m buying the pink stuff because I’m hoping it will taste better. I have heard from numerous qualitative narrative sources with “lived experience” (aka Facebook groups) that it tastes better, or, at least, that it comes with a better pill coating that makes it taste less like anything. Even after two years of taking salt pills, I still gag a little three times daily when I take my prescribed grams of salt daily for dysautonomia. I know there are white salt pills out there that are so well-designed that they truly do taste like nothing. In a world where science can design “burpless” non-odorous fish oil tablets, simply masking the taste of pure salt isn’t an intractable user-design challenge. But, those resulting fancy “sports performance” salt pills are almost twice the cost of simple salt pills. Since I take half a dozen of them daily, that cost differential adds up.
Today, though, Amazon had a sale that reduced the cost of pink salt pills with an external pill coating to the same as the uncoated white salt pills that I normally buy. I jumped on it. Even for a month, it would be nice not to have to choke down the taste of pure salt in the morning. (If you don’t have dysautonomia, grab your salt shaker and shake it into your mouth immediately upon waking up. That should give you a sense of why taking my morning uncoated pure salt pills remains so unappealing even years later!)

I readily admit that this sale could set a dangerous precendent as – after a month of potentially not gagging a little three times daily – I might not have the willpower to return to the cheaper stuff. I still suspect that even if I do end up shelling out more regularly for pink Himalayan salt tabs, it will still be because of my taste preference, not because some salt is better than other salt. I have that self image to maintain, after all.

I could be wrong though. I have an excellent track record of identifying my own symptoms once they rise to the level of being so intrusive I can’t ignore them anymore. I can be fairly oblivious to sub-threshold issues. This morning’s purchase reminded me of one of those times when I convinced myself I was falling for the placebo effect, but I had accidentally stumbled onto a real medical issue that benefitted me to treat but would probably never have risen to the surface if not for my own ADHD inattentiveness.

This week’s Message in a Bottle is the story of how I accidentally empirically detemined that I was deficient in zinc simply because I failed to plan ahead. I wrote up the experience in a post that I originally intended for my nascent blog in 2017, but by the time I actually got the zinc test that confirmed I was deficient, I had forgotten about it. Any memory that I had ever written that post remained lost to the far corners of my brain – though I do take zinc and get my levels checked every six months – until this morning. It’s a bit of a mistake to claim that there is no filing system within the ADHD brain. If there wasn’t, I’d never have been able to retrieve the memory in response to any reminder at all. It’s more like…there’s a poorly designed filing system based on quixotic semantic associations that change every few months.

I couldn’t retrieve the appropriate filing index for “I once wrote a blog post about wondering if I had zinc deficiency” when I was tested for zinc deficiency. That would be too simple. I could retrieve that post after buying pink Himalayan salt pills this morning because the index was actually tied to the semantic category of “all the things in the world that might cause placebo effects.”

Also, for anyone wondering, yes, there have been a few published studies suggesting that zinc can mitigate some ADHD symptoms in those with measurable deficiencies. But, its effectiveness seems to be limited to symptoms of hyperactivity and impulsiveness. Thus, zinc itself is probably not ever going to help me remember whether or not I have written any posts about zinc deficiences. However, paradoxically, having my rather “unique” mental filing system and network of semantic associations has actually been one of the most beneficial aspects of having ADHD for me as a scientist. While everyone else is thinking “B” when “A” is mentioned, I’m usually the one activating “X, Y, Z” and going “but, umm, what if it was actually this…” (Also the one going “I need to zinc think about this for a moment” because once I realize what they might be missing, I also realize what I might be missing, too!)

Continue reading “Messages in a Bottle #13: Placebo Effects”

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End-User Experience

SelfCareRevelation
<Image Text>: “Most People have ‘Ah ha’ moments. I have “Oh for fuck’s sake, fuck this shit” moments.” Note: this is a pretty apt description of the process of me finally accepting that I’m better off actually taking care of myself rather than letting the opinions of others prevent me from benefitting from readily available accessibility aids that would save me critical spoons.

Movie theaters have become events in and of themselves. One that opened near us recently has a full restaurant inside of it where patrons can eat at traditional tables before the movie – or order their carnitas nachos to be served at tables inside the theater while they recline in their heated leather seats. The theater also boasts gourmet versions of standard guilty pleasure treats made with all natural, non-high-fructose-corn-syrup ingredients like white raspberry slushies and cheddar and caramel popcorn.

And – although they offer treats with more FODMAP-friendly ingredients that make me less likely to need them in a hurry (if you know what I mean) – they additionally offer bathrooms with marble stylings and individual sinks each equipped with their own personal accoutrements and air dryers so I’m not missing even more of the movie than necessary getting stuck waiting in a line when I’m hoping to rush back to my seat after an inevitable potty break during the three-hour-long Avengers: Endgame.

All of this luxury comes with a price tag roughly 20% higher than a standard 3D theater without these little extras. My Partner and I only see a handful of movies in a theater each year. We figure for those movies we judge worthy of a night out, we might as well make it a true experience. (Also, those bathrooms. Seriously. That alone is worth 20% more to any spoonie with GI issues as part and parcel of their diagnosis…)

Unfortunately, the first time we saw a movie in our new elaborate dine-in theater, the experience was missing one detail that further explains why, in the end, it hasn’t only been the price tag that has limited the number of films we’ve seen in a theater each year. Closed Captioning.

Continue reading “End-User Experience”

Coat in the Act

funny-Ironman-Tony-Stark-heart
<Image>: Captain America says to Ironman “Big man in a suit of armor…You take that away and what are you?” Tony Stark replies “Stark naked!” I have not seen Endgame yet, so this meme is not permission to spoil it!

Some people are aware of everything, including their clothes, to the point that they can instantly pick out their generic solid-colored raincoat from among all others. There may be many like it, but that one is theirs.

My Partner is one of these people. He’s acutely aware of color shades and such minute (to me) details, even as he simultaneously sports a minimalist wardrobe of 5-7 pairs of solid-colored slacks and shirts that fit him comfortably that he buys in coordinating shades and wears repeatedly. He always recommends I go similarly minimalist, but I still fear the ever-present career double standard for women. Drawing overt attention by dressing outside the feminine norm feels too exposed and risky. It’s not as under the radar, unfortunately, for neurodiverse women to fully embrace comfort and simplicity over fashion, even if my diminishing numbers of spoons from various diagnoses have gradually pushed me in that direction out of necessity. Guides to minimalist female wardrobes still talk about wearing a small number of items in so many ways that it looks like a month’s worth of unique outfits. This implies that having a month’s worth of unique outfits is the norm. At that point, it seems easier to just own a full month’s worth than to add daily mental gymnastics to combine a much smaller number of pieces to look like more into my morning routine. Committing to the laundry to stretch fifteen items of clothing or some such into a month’s worth is also pretty daunting in and of itself.

I wish that I could buy a small set of slacks and shirts and just wear them repeatedly instead of having to Rube Goldberg them. The idea of a uniform as my “personal brand” is incredibly appealing. But – though I haven’t fully embraced the uniform idea – I have a few all-or-none clothing awareness items that matter to me. I am clueless about fashion, but I have meaningful criteria that help tamp down that panicky, overwhelmed ADHD choice paralysis whenever I have to go shopping. For instance, I picked out a new spring raincoat coat recently. The inner lining had to not feel “sticky” when the plastic touched my skin. I hate the sensation of sticky above all other sensations. It had to have pockets – which too many women’s clothing items don’t – and those pockets had to zip closed or anything I put in them would inevitably fall out and be forgotten. It had to be sufficiently waterproof that – if and when I inevitably left my umbrella somewhere – it could do a decent job without any umbrella adjunct, yet it also had to be lightweight enough to fold up and live permanently in my bag without hurting my EDS joints until needed. It also had to be a simple, solid color, because anything brash and “stylish” can’t be worn until it wears out without drawing attention. I’ve had these criteria for coats for years, so, by this point, I have learned to look first at North Face and Columbia Sportswear and only seek further if they don’t have anything suitable. The winter coat that I have had for almost a decade and probably could pick out from a lineup is by one of them. (I’d have to go look in my closet to remember which, though, so maybe that still says something!)*

I went to a conference last week that was close enough to commute by train and return after one overnight. The northeast has been receiving a lot of rain lately – enough that I remembered and needed both the raincoat stuffed in my bag and an umbrella just to be safe – and conference goers were universally soaked by the time they checked in at the front door. The conference did not, however, have a formal coat check. It only had a self-check rack with a sign stating not to leave anything valuable since it wasn’t manned.

I normally keep my coat and other items with me in such instances. If I see a line for a coat check at the end of the day, it will remind me of the little slip in my pocket and the fact that my coat is at the check as well. I won’t notice a self-check that people walk up to in ones and twos. Without even a coat-check sticker prominently stuck to – or used as a bookmark – on my conference program to remind me, there’s too much of a chance I’ll leave without my gear if the weather changes while I’m inside. (I’ve also lost enough conference programs during the program itself, because I have a gift, that the end-of-day line for a manned check is still a necessary backup reminder.) But, there was little I could do this time. I was soaked like the others, and I assume they’d have found it rude if I dripped on my neighbors in the cramped auditorium seating.

I thought I was incredibly proactive in handling my conundrum. My umbrella was a generic shade of dark navy, and my coat was too new to be confident I’d recognize it. So, I made sure to discretely snap a picture of the rack orientation of my coat and to loop my umbrella over the same hangar. Nobody else seemed to be doing this, presumably because this would allow their umbrella to drip onto the inside of their raincoat. They used the available shelf to stow their umbrellas. I thus figured I had plenty of memory aids to identify that coat I could remember so many specific minor details about but that I still wasn’t confident I could pick out of a lineup.

It probably would have worked, too. I waited long enough for the coats to dry then returned over lunch – before the rush of people at the end of the day – to retrieve my coat and umbrella before I could a) forget about them entirely or b) be thoroughly embarrassed by being caught staring intently at my visual aids to locate my stuff.

The coat rack looked nothing like it had in the morning. Some “helpful” person had straightened it up in the meantime. Every. Single. Umbrella – including mine by default – was neatly stacked onto the rack. Every umbrella looked exactly the same. There was no grey raincoat at the end I’d originally hung it. There were, however, four total grey raincoats in my size from North Face that had their trademark dry weave lining, zippered pockets, etc. I first discreetly rifled the pockets of all of them in case business cards, chapsticks, maxi pads or any others of the dribs and drabs that tend to accumulate in the pockets of women with ADHD could act as tell-tale markers. The pockets were all empty. My own coat was still too new for me to have had time to mindlessly collect.

The coats differed in their shade of grey, however, when I looked at them in the light. Thank goodness. The umbrella was much harder to identify until I finally remembered my current one had a push-button mechanism to launch it. Only one of the many identical-to-my-eyes dark navy specimens had an automatic feature. I found my stuff without being caught looking as lost as I felt, folded my coat up and stowed my items in my bag. At the end of the day, I put them on and got a lift to the station.

My Partner looked me over when I got home and said he liked my “replacement coat” for the one I’d lost on my trip better than my original. The “lighter shade of grey looked good with my hair.” FML. If my Partner could instantly tell it was a different coat, I guess I’m not as perceptive as even I thought I was. I trust his attention to detail. If he says it’s a different coat, it is a different coat…

How in the world do I attempt to call the organizers of a past conference and explain that I walked off with a similar – but apparently not nearly as similar as I thought – coat and didn’t realize it until someone else noticed? Is there even a mechanism to report lost and found, or was their blanket warning not to leave any items we couldn’t afford to lose on the coat rack tacit admission that my “borrowed” coat will remain my coat from now on? Is there any hope that the owner of that coat also can’t tell the difference and is even right now blissfully wearing mine, equivalently unaware of our switch?

I guess it’s time to start writing my name in my outerwear and assuming anyone examining my coats closely enough to see it would, like me, be grateful in the moment for any clear visual signal that the coat they are examining is not theirs.

For whatever it’s worth, though, my Partner-who-notices-everything did confirm that I successfully returned the same umbrella that I left with. I may be an unintentional coat thief, but I’m not an umbrella thief as well. That may be the fashion equivalent of shooting the sheriff, but not shooting the deputy, but I’ll take what I can get…

*P.S. – my winter coat is actually by Merrell. My Partner has one from Columbia. But, after asking him, my Partner at least confirmed my previous rain jacket was by Columbia and I was correct in my memory that the jacket that I unintentionally swapped really was by North Face. I had the brand of the real coat right, if not the color. And yes, for anyone wondering, I do force my Partner to come shopping with me. He’s much better at this than I am, even though he himself only ever wears slacks and shirts.

Need a recap of anything I’m talking about in any post? Check out the Glossary of Terms.

Shooting for the Spoons

A lot of popular wisdom is rather dubious when actually examined. For instance, the common career advice to, “Shoot for the moon. If you miss, you will still land among the stars.” Unless the flat-Earthers know something I really don’t, even good old Sol is much further away from us than the moon…

Another bit of dubious popular wisdom I hear regularly from would-be experts (who have usually never heard of most of my diagnoses before) is, “An apple a day keeps the doctor away.” I certainly am careful with my diet, but an apple a day does not keep the doctor away for me. In fact, following the common wisdom for most of my working life to eat as naturally as possible on business trips to minimize GI symptoms has been about the worst possible choice for me. On travel per diem – and thus not responsible for remembering expiration dates for the fresh veggies and fruit that I so often forget in my fridge for weeks until they spoil – I would load up on all of the fresh fruit in an attempt to keep the gastroenterologist away. And, yet, I always felt like my IBS symptoms were worse on business trips anyway. The inevitable refrain from the “apple a day folks” – and many of the doctors that were supposedly being kept away – was that it was just “my anxiety” exacerbating my symptoms. So, I both had to plan for disaster each time and for the bully-in-my-brain to refrain how it was my fault since I couldn’t just “relax.”

Continue reading “Shooting for the Spoons”

Improv #15: Twitterpated

*Knock knock*

“Who’s there”

“Hashtag”

“#who?”

“#whoknewTwitterwasoccassionallyuseful? Not me, at least not until today…”

I do not take the full – or even the half – advantage of social media that a blogger is supposed to, so I can’t actually add my contribution to the #AbledsAreWeird Twitterstorm on Twitter itself. I can say I have been laughing myself silly over that hashtag today. For any spoonie who hasn’t seen it, I highly advise you to check it out when you need a break from the world today.

Since I am not twitterpated by the idea of adding yet another form of social media for my poor ADHD brain to have to manage in general, I’ll add the contribution I would have tweeted if I bothered to maintain a Twitter presence for my blog here instead. (But, though I’m only posting here, seriously go check out the actual hashtag on Twitter too!) I will, though, at least conform to Twitter rules and keep my contribution to 280 characters:

Improv actor share:”Doc 1st thought symptoms were chronic, but thank God my infection was acute. How could I live w/pain forever? Life wouldn’t be worth living!”
Lav(next up w/visible cane):”I guess my share is I’m chronically ill & life is worth living? Kthanxbai”#AbledsAreWeird

Yes, that’s a true story, and from very recently. No, I have no idea what, if anything, I should do about it. The person who made the comment was just a student in a class with me. That class is now over. In principle, I won’t see them again? (I mean, it’s not like I’m going to choose to perform in an indie troupe with someone who’d speak like that when I’d previously shared that I occasionally require accommodations for the physical parts of improv because of my chronic illnesses and they still thought that was an appropriate way to phrase a weekly highlight…)

But, the instructor, who is a regular and very serious theater performer, also did not seem to get that there was anything amiss about that comment. This speaks to the broader complete cluelessness about spoonie sensitivity that the hashtag also makes apparent. There’s clearly a need for more awareness among the theater crowd about a) why a spoonie’s life is worth living, even with their chronic illnesses and b) why if an abled performer doesn’t happen to agree, they should still keep their big fat mouths shut about it since at least 1 in 4 of their audience members will also be living with some form of chronic physical or mental illness.

The theater has been encouraging “tough conversations” around diversity and women’s issues in the theater recently. So, it seems like it might be an appropriate time to point out that many performers – and audience members – are also members part of the largest minority group in America. It is just as critical to have “tough conversations” around how to speak about disability as it is to discuss how to speak about race, class, culture, religion and sexual orientation. I am getting really sick of even so-called Progressives managing to include just about every possible form of inclusiveness except disability in their sensitivity training. I’m also not really high enough up in the theater to know where to start to change the narrative, unfortunately…

Need a recap of anything I’m talking about in any post? Check out the Glossary of Terms.

Crushing it

Things that went through my mind in the process of composing this week’s blog post:

  1. To Partner: “We need more of those crushable baking potato chips that are not potato chips…”
  2. Hey, there is an entire site devoted to logging prior weather in the U.S.! Someone anticipated the deep-seated need of the ADHD community for a site to fact check them when they write, “Even though it seems hard to believe when we hit the 70s this week, we were in the 20s just last week” and they can’t perceive time well enough to remember if it really was “just last week” – or only felt like it.
  3. Good. My Partner added bread crumbs to our order.
  4. That historical weather site was probably intended for historical fiction. Solipsism is great in theory, but the idea that my mind shapes all of reality falls apart immediately upon being reminded that there is (still) no site to determine the actual word I am looking for from the random descriptions of my ADHD/brain-fogged mind. If the Internet were built around me, there would be. Ipso facto, my mind is not the only one that exists.
  5. To Partner: “You are right that if we order bread crumbs instead of making them, then they are not ‘crushable’ but ‘already crushed.’ Isn’t tense relative to the frame of reference though? By the frame of reference of the bread crumbs, the description is ‘already crushed.’ Potato chips don’t come pre-crushed. So, didn’t I use the correct tense for their frame of reference?”
  6. The moment an AI can obtain ‘bread crumbs’ from ‘crushable baking potato chips that are not potato chips’ – regardless of tense – is probably the moment we achieve the Singularity.
  7. This list of random thoughts is about to be longer than the rest of the blog post.
  8. This is also why my Partner and I crush games like Taboo and Heads Up. Maybe I should just go with that and make this post about how effective communication in relationships becomes even more convoluted with brain fog?
  9. I should still explain why I was originally looking up the weather last week to fact check myself, even though it seems kind of anti-climactic now to state that chronic illness and ADHD can lead to word-finding difficulties when I’ve clearly shown it.
  10. Wait, my original example works just as well as an example of effective communication with chronic illness! I can just relay the original conversation from last week’s cold snap that was intended to become a polished blog post verbatim! Crushing it.

Continue reading “Crushing it”

Improv #14: Sing the Moment

*Knock knock*

“Who’s there?”

“The Perfect Moment”

….

….

“The Perfect Moment who?”

“It’s too late. You already missed it.”

I could use this post to say something vaguely motivational like “feel the fear and do it away” or that it’s possible to “seize the day,” even with chronic physical or mental health challenges. I could use this post to talk about FOMO or the crash that occurs when the future calls in a lien on the present in payment for spoons borrowed against it. I could do any of those things, but I won’t. I may be the only guru I trust, but I only (mostly?) trust myself because I don’t attempt to say the kinds of motivational stuff even I can’t listen to without rolling my eyes. I still prefer snark over spirituality.

Also, I know that I couldn’t back those topics up if I tried. I mean, how could I plausibly talk about seizing a moment when I have no idea what a moment even feels like?

Did I ever mention that researchers out there have amassed evidence that, at heart, ADHD is a neurologic deficit in time perception? Our sense of time is non-neurotypical, to say the least, and totally gone at worst.

Continue reading “Improv #14: Sing the Moment”

Striped Girls Can Jump?

Reminds me of a few people I know!!
<Image Text>: “Your flexibility amazes me. How do you get your foot in your mouth and your head up your ass all at the same time?”

People have the strangest reactions to learning about Ehlers-Danlos Syndrome. So, telling them about it when you are already socially awkward quickly becomes a study in ridiculousness. For instance, I got to have that discussion recently with my hair stylist. It ended with me jumping up onto things alongside the majority of the salon staff. I promise there was no alcohol involved. I just would rather do practically anything – including impromptu social experiments – than make “small talk.”

My stylist knows that I have dysautonomia. I hadn’t exactly planned to tell her, as how does one broach that conversation during “small talk” at a salon, but fainting in her doorway last year kind of forced the choice between sharing the diagnosis or paying whatever the deductible would have been for an ambulance ride when the owner was afraid otherwise I’d die on him – or worse sue him. My old office, before my bully-of-a-boss fired everyone in it and made its lone survivor a fully remote worker, used to have a faulty heater. I had to wear a sweater, an undershirt, and a camisole just to keep from turning blue in that office most of the year. In winter, I’d then add a big heavy waterproof coat, scarf, gloves and hat on top of it to walk the about ten minutes from my office to where I get my hair cut. I learned last winter that just because it is 50 degrees inside your office and about 20 degrees outside, some salons will inexplicably choose to keep their facilities at about 80 degrees. If you walk into one of those salons wearing all those layers, you’ll pass out in the doorway from the dramatic temperature change. At that point, the cat’s out of the bag.

Continue reading “Striped Girls Can Jump?”

Subway Sociology #3: Of Subways and Cigarettes…

CW: mentions of an attempted robbery on New Year’s Eve that did not result in any injuries or financial loss. Mentions of past acute traumas, including a threatened mass shooting, that I have experienced, fortunately also without injury.

Does acute trauma add to the mental trauma load if you’ve already experienced the 9th Circle of Hell? I know that every experience of abuse – past and present – in the 9th Circle of Hell has been one more piece removed from the fragile Jenga tower of my mental health. I know that 9th Circle of Hell trauma compounds, but should I count non-9th Circle of Hell trauma? Does something that I would definitely call traumatic if it happened to others – but that will never take up residence in my nightmares because the price of that mental real estate was set too high by the 9th Circle of Hell – count as part of my “trauma narrative?”

I read a post recently from a blogger with a severe trauma history who witnessed a guy open-carrying a gun in a coffee shop. She was triggered, but she had her coffee there anyway. She had to ask if she should have left or if she was overreacting. Go through enough childhood trauma and your perspectives can get very skewed on things. I commented that the statistics on mass shootings in the U.S suggest that it is wise to leave such situations as soon as it is safe, and maybe even to hang out down the block to call 911 if shots are heard. I almost added that I am very wary of guns “even though guns aren’t a part of my trauma history.” Then I stopped and realized I might be being an idiot. I do have a prior scary history with guns, though I don’t think it is contributing to my PTSD symptoms. I briefly considered writing a future post about whether it is possible to be “triggered” by something while thinking you were unaffected by an event. Then I promptly forgot about it, because ADHD, until my Partner was on the receiving end of an attempted robbery on New Year’s Eve.

We both recovered from the fear within hours, but I wonder – given that other post – if that’s completely accurate, or if we’re just a bit too numbed from the 9th Circle of Hell to respond normally to things that should shake us up for a few days. The robbery wasn’t successful – or I guess very successful – but threats were involved. My Partner did take them seriously until he was able to get into a place with others around to not take them seriously anymore. It was a scary situation while it was happening, even if it ended ok. What is considered “normal” for recovering from acute scares – as that other blogger similarly asked – if your baseline isn’t Hell?

We were heading home from dinner on the subway. Our subway system isn’t accessible in many places. In some places, it’s only “accessible” if you get off at a stop on a line close by, take an elevator, and walk through an underground ramp at a gentle grade that can handle a wheelchair at least a block to the other station. The alternative to walking a block is to have to climb what I unaffectionately refer to as “Stairs of Death.”

Continue reading “Subway Sociology #3: Of Subways and Cigarettes…”

Improv #12: Funny You Should Mention That…

memorial quotes for son | Share Inspirational Picture Quotes About Life - On Facebook
Image text: “Pretending to be normal, doing your best to act like you’re ok, day after day, week after week, month after month, it’s just so exhausting” over a woman crying.

For anyone wondering, the Thanksgiving turkey turned out great. Cooking a turkey is like cooking a whole chicken. If you want to practice before next year’s big day, cook whole chickens. Then, do the same thing on Turkey Day for about 3-4 times as long. (Also, turkey enchilada stew and buffalo turkey sandwiches feel much more like a “change” from a week of all-turkey, all-the-time than the standard turkey pot pie and stews that are usually recommended.)

Unfortunately, my Partner sent our only photos to his parents when he last spoke to them. Now there’s a remote chance they could someday identify me as the author of this blog if I recycled those pictures. I used an herbed-butter rub and baked the bird with roasted vegetables for aromatics. The pictures, through the magic of Google image search, could theoretically be vaguely identifiable. Every picture of the same natural feature looks about the same. (I did some digging to prove that to myself before posting Iceland pics last year.) As long as I pick out different photos for his parents and my blog, I can share travel photos here and still keep my worlds separate. But, I can never share the same photos, or my worlds might collide, right?

Not really. All Thanksgiving turkeys also look about the same, so there’s nothing truly stopping me from posting the same pictures here except my ingrained need to keep my worlds separate. There’s nothing except my ingrained need to control to whom and in what situations I reveal just how not normal I am. I am still masking in most of my life, and, though it sucks, I don’t think I’d know how to fully unmask in daily life if I tried. Unmasking hasn’t been safe in childhood, in my workplace and in advocating for my neurodiverse sibling within a regressive, systemically abusive state.

Continue reading “Improv #12: Funny You Should Mention That…”