Messages in a Bottle #9: The Archivist

This CW is so important it should be in neon flashing lights. This is a serious post. Serious like: mentions of 9th Circle of Hell current systemic abuse, mentions of the same kind of systemic abuse on another blog, and mentions of past suicidal feelings and coercive control. I really meant it when I said the lights were off this month, so please please be careful when reading this blog post. There is no date on this “past” post because it’s not truly a post written in the past. It’s a memory, from a time when I would never have written anything down, that has been bothering me. I think I need to write to exorcize that old ghost and thus fight my new demons more effectively. Be safe.

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Improv #11: I’m Mrs. Bright Blogs

*Knock knock*

“Who’s there?”

“The Bright Side”

“The Bright Side Who?”

“The Bright Side Who Doesn’t Actually Exist”

“Oh. Then I guess this is just another dissociative conversation with the bully-in-my-brain, then?”

“You catch on not quickly at all, don’t you? Also, your joke sucks.”

I’m fairly sure the first rule of building a blog audience is “own your domain name so you can engage in SEO and promote yourself across social media.” I failed that rule the moment I set up my account because I was too afraid to pay for an anonymous blog with a non-anonymous credit card. I also do not have the spoons to maintain more than one social media site, period.

I maintain a free site even though my lack of spoons has gradually led me to dial back on the other paranoid hoops I used to jump through to maintain anonymity. Part of my expression of a PTSD sense of foreshortened future is a fear that, if I did dare to make that all-of-$36-dollar annual investment in a domain name, I’d immediately go broke. I would be inviting the wrong kind of irony magnet. Then, my audience accustomed to something simple like “lavenderandlevity.com” would all abandon me as soon as continuing to follow me required the modicum of effort to bookmark “lavenderandlevity.wordpress.com” again. If you follow me while I use the free version, I suppose you’ll probably follow me on a paid version. But, would those who would only follow a paid version ever bother to reverse course? Do I really even want followers for whom I have to write witty, engaging content all the time? C-PTSD says just stick with free: I’ll never have to fear inevitable future rejection from potential future financial disaster. C-PTSD is dark.

Which sucks because…

Continue reading “Improv #11: I’m Mrs. Bright Blogs”

Where Would the NHS Rank Trauma on the Pain Scale?

Hi everyone,

First, I want to say thank you to everyone who talked me through the past two days. I made it out of that Sheraton break room eventually, and I did manage to give my presentation the next day. I know some people asked what I was presenting on, but in the world of research – startup, policy, or academia – your research is probably the most tell-tale marker of your identity. If I told you about my presentation, I’d be telling you who I was, who my bully-of-a-boss was, and – by extension – who my sibling and all the various systemic abusers in the 9th Circle of Hell were all in one easy Google search. I’m sorry, that doesn’t feel safe. Hopefully, the grad students and professional researchers among you understand.

The bedbug place lost its license, albeit not for the reasons I originally expected. I still don’t know the reason. They also appear to have chosen not to undergo the appeals process they – as providers – are entitled to in the 9th Circle of Hell. (The 9th Circle of Hell, of course, has no corresponding client appeals process or any independent way to determine the outcomes of license inspections. Yes, this is technically a violation of federal law, for those few of you in the know who are wondering, but it has been ignored by the feds for at least two years.) They packed up, fired their employees, and for hours it seemed like they were prepared to dump several facilities worth of patients on the street.

Continue reading “Where Would the NHS Rank Trauma on the Pain Scale?”

Don’t Let The Bedbugs Bite

*In the 9th Circle of Hell, bed bugs warrant a CW. Respect your mental health when reading.*

I have a standard caveat on my blog that I will change minor details or abstract timelines for the sake of maintaining anonymity. Despite that claim – sensible though it probably would be to actually do that – to my knowledge, I have only actually changed two tiny details about my life for my blog. Both have been about the specifics of what my workplace produces and to whom it markets it, which are probably sensible precautions given my bully-of-a-boss’s penchant for firing people. The 9th Circle of Hell seems to think themselves so far above the law I probably could call out the abusers by name and they’d just laugh that they were still invincible, but my boss might just be the kind to fire a person on suspicion alone because he thinks a random anonymous blog with less than 1,000 followers could possibly be about him.

I’ve not changed any details about the 9th Circle of Hell. All the crap I’ve written about it – past and present – is true. It really is that bad. In fact, if anything, what I’ve written to date on my blog remains only a sanitized version that leaves off a lot of the nitty-gritty everyday horrible things I’ve experienced dealing with that state in favor of sharing the biggest atrocities. I’ll stay anonymous forever for my own and others’ veil of pretended protection, but it turns out I can’t actually alter details of my life when talking about the 9th Circle of Hell. I can’t even always be as vague as my PTSD hypervigilance thinks would be prudent. My PTSD brain simultaneously wants to protect itself by maintaining a veil of “generic everyman-ness” to my story, yet also keeps demanding I share details that are very specific to my story. It can no longer contain all of the things that have happened within and because of that state without the refuse overflowing, and my blog seems the safest place to dump the trauma wastewater.

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Déjà Voodoo

Update: I also posted this in the comments, but then I remembered that smarter folks than I often skip the comments. The author of the original blog post that inspired this one contacted me. She has taken it down and apologized. She also seemed like she was still beating herself up over it even after I accepted that apology, so I want to state openly that she doesn’t need to. In talking to her, I’m reminded again that being non-neurotypical so often means communicating is terrifying and awkward and hard. It definitely still is for me, especially in person. We all make mistakes. We all struggle with what we mean to say not ending up being what we actually say. Character is in how we respond to our mistakes, and she showed she had character by caring when her post so severely triggered me. If (when – I have ADHD after all!) I ever upset someone with my writing, I hope my readers will tell me so I can have the chance to apologize, too.

That is something that none of the other déjà voodoo writers I have ever contacted about internal stigma – including Dysautonomia International, who puts that kind of stuff on main public pages – have ever done. I think it was very brave of her. I’m leaving this post up because I’ve seen a lot more than just one déjà voodoo post out there, and, to date, only one person has said: “I’m sorry.” There are a lot of folks who still need to see this post.

But, the author of the post that originally inspired this one is no longer counted as one of those people in my book. I genuinely wish her the best in her blogging tenure, and I hope others will too. Being non-neurotypical is rough. We both know it. It’s important to call out internal stigma, but it’s equally important that we forgive mistakes within a community of people for whom just communicating at all is often fraught with fear and memories of years of failed attempts. Point out mistakes, then welcome their makers back into the community with open arms immediately as soon as they make a genuine attempt to correct them. If we continue ostracizing our own internally long after they have apologized, then we risk becoming abusers in yet another way. We risk becoming those emotional abusers who keep torturing people for their “mistakes” years later without ever giving them a way to move on. I’ve also been on the receiving end of that type of abuse, and I don’t wish it on anyone who cares enough reach out to me.

Do you ever experience blog post déjà voodoo? You know, where you’d think you’ve written about a topic so many times by now that you could cease having to keep writing about it? Where you’d think you could finally put a pin in it? Yet, somehow, the thing that upsets you so much just keeps creeping up, zombie-like, such that you can’t let it rest?

I owe my subconscious an apology. I mocked it a few days ago for being so far up on its soapbox that it wrote an entire novel in my dreams about the need for internal unity among those of us with chronic physical, mental or developmental disabilities. I laughed because I’d written multiple blog posts on the topic already, and shouldn’t that be enough?

I should have understood that my chronically traumatized brain is so obsessed with the topic because it knows firsthand from too many years of experience what my heart doesn’t quite know how to accept: people don’t change. People will always seek to protect themselves first by selling others out. Or, at least most will. So, I’ll probably be writing about why that doesn’t work and desperately trying to appeal to the better angels of the blogger community for the rest of my blogging days.

I read another déjà voodoo blog post just now. This time it wasn’t dysautonomia vs. anxiety or PTSD vs. “true” mental illness. In this one, the author felt that the only way to express how life-altering it is to have ASD was to compare it to how life-altering it isn’t to have ADHD. The only way to gain acceptance for one type of neurodiversity was at the expense of another. The author stated their opinion that ADHD – while technically a form of neurodiversity – barely qualified for the category because it was simply an “accessory” diagnosis that could be “practically nullified” by treatment. (Yes, those were their chosen words.)

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For Better or Worse

CW: Anonymity is so inconvenient sometimes. I can’t, for instance, tell you the actual state motto of the 9th Circle of Hell. “Abandon Hope, All Ye Who Enter Here,” while appropriate, is actually not nearly as morbidly satisfying as the true state motto. If I ever write a memoir of my experiences in Hell – or, better yet, find a way to channel its traumas into some kind of a black-comedy stand-up – the title will simply be the unadulterated state motto. Some things are just too darkly ironic in and of themselves to be able to be embellished by even the most skilled satirist.

That said, the aforementioned “Abandon Hope, All Ye Who Enter Here” is appropriate enough as a placeholder that any post I write about the 9th Circle of Hell from now until eternity probably warrants a content warning. Keep that in mind. This post is a darkly ironic reminder that trauma really does affect everyone, whether they grew up in Hell or married into the family.

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Frozen in Time

CW: Don’t read this if you are in any sort of a bad place. I’m physically safe. I’m mentally shattered. You don’t need to do anything. There’s nothing anyone can do anyway unless they had serious political connections. I am not a danger to myself or others. No, the danger, as always, is from others, and this post is more about trying to survive their latest devastation. This post is about how it feels like it’s getting harder and harder to try to survive. It just never ends. It’s a dark post – even though I promise I’m safe – so please read with caution. I’m the scant protection someone else has from the 9th Circle of Hell. I won’t ever abandon that responsibility to ease my own pain. I’ve been on the other end of that type of abandonment and still feel the hurt and weight of the responsibility it left me with. I will survive this and keep fighting as best I can. I just wish deeply right now that I didn’t have to.

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Blog Awards Series #2: Veteran of the Blog Awards

Back in college, I was an RPG gamer. I didn’t actually start with D&D, though. I started with a few more “freeform” type systems where I could create my character with all sorts of attributes that don’t fit into the standard D&D class system. I’ll be honest, D&D felt kind of limited after having freeform as my introduction to gaming. (If anyone ever wants to run an online game in some weird indie system, I’d totally join! I’d just be years worth of rusty at it!)

One of those more open-world systems had a trait you could offer your characters called “Weirdness Magnet.” It was exactly what it sounded like: weird things would just keep happening around your character. I remember the description was something akin to “If there was exactly one talking alien dog that would ever visit Earth, they would immediately stroll up and say hi to your character.”

I created a character at one point who had a variant of that trait, who was an “Irony Magnet.” Whatever the most ironic possible consequences of what they stated would come to pass. I’m feeling a little like an irony magnet – and not just in improv – myself today.

I talked about the kind of Little List that I usually think about – or, rather try not to think about – in my last set of blog award questions with regards to the 9th Circle of Hell. I legitimately did not give any mental attention to that other type of list that also exists, AKA the list of registered abusers with substantiated claims against them who aren’t allowed to work with the vulnerable.

Those lists haven’t been of much help in most of my dealings with the 9th Circle of Hell. Even when I could substantiate the abuse itself, the system protects the perpetrators to the degree it is virtually impossible to pin the action on the specific person accountable, which makes the substantiated allegation itself worthless, for all intents and purposes, since no one pays for the crime that is documented. Assuming that I ever did hold someone accountable, the list, I assumed, would be useless, as providers also don’t bother to actually do the background checks to determine they are employing someone who isn’t allowed to work there.

Well, that generally useless list has some additional names on it, and I’m the reason they are there. And, based on the date of the official letter, they may have been put there while I was studiously avoiding thinking about that other kind of list in my last blog award. Irony magnet, thy name is Lavender…

I feel like I should feel more victorious over this. I especially feel like maybe I should feel more victorious because, if a couple of others we’re working with are to be believed, further investigations are in the works and perhaps they will lead to more far-reaching actions. (I won’t say any more than that, because, well, I don’t want to be the idiot that jeopardizes future outcomes by speaking about them prematurely. I will only allude to what has been substantiated.) Yet, as I’ve mentioned before, there is a persistent habit of not bothering to check the lists before hiring decisions, so does a list that isn’t enforced really exist at all? Also, I’m honestly just exhausted. I’ve been dealing with this for longer than I’ve been a legal adult, and I have lived the brunt of so much crap over the years that any tiny victory feels irrelevant in the face of how broken the overall system remains. Hell, I’m doing any entire light-hearted series of “get to know me” questions just in the hope that there will still be a me left over after this journey through Hell ends. Years of trauma take a toll.

I said this to my Partner, and he asked if my blog award series included any questions about songs that represent my life. (Another fun fact: I used to assign my RPG characters songs that would help coalesce their personalities when I designed new characters.) If any do ask, he told me that I should include the song Veteran of the Psychic Wars as my song for my backstory, both with my family of origin and with the broader 9th Circle of Hell. I have to say, thinking about that other list and the new names on it, I see the applicability. My primary response to the new names on the list – when I can manage to muster anything beyond just psychic numbing – is just to agree that the line “wounds are all I’m made of…did I hear you say that this is victory?” certainly describes how I feel about this “victory.”

Still – given the irony magnet that my first set of answers ended up affording – let’s see if I can find a way to answer these next set of questions with something akin to me winning the lottery, eh? Or maybe just winning a free trip somewhere on my bucket list, since I’ve written about travel more often than I’ve written about little lists and, to date, no conveniently opportunities to cross things off have shown up. (I’d live with whatever irony came along with the trip just to have a free trip, at least so long as my irony magnet didn’t somehow lead to me winning that trip from the 9th Circle of Hell state tourism board…)

Today’s Questions Courtesy of Alison at The Unabashed Autist

Continue reading “Blog Awards Series #2: Veteran of the Blog Awards”

Absent without (Family Medical) Leave

I know the DSM-V no longer includes the term “nervous breakdown” anymore. I’m fairly confident even if it did include it, since the origins of my panic attacks, crying, dissociation, and depression are quite well known, I’d still just end up labeled with the “dissociative subtype” of PTSD (aka the compromise that is supposed to cover C-PTSD).

I have had to deal with the 9th Circle of Hell about this damn most recent abuse and medical-neglect-leading-to-multiple-medical-crises case three times within four weeks. I will have to go back to Hell again this month. I’m fielding calls on top of that. I’ve spent a quarter of my take-home pay for the past few months on that shithole, be it in travel fees, medical bills, lawyer’s fees, etc. I’m not even the only one financially contributing to fighting for “care”, but when the cost of failure is potentially life and limb, I’m not questioning it so long as I still have the money. The origins of my distress are not a mystery and fit neatly into the DSM-V trauma disorders bucket. I doubt I’d be said to be having a nervous breakdown even if the term was still diagnostic.

Add on top of the trauma situation itself a boss who lost it with me over email when I politely sent him a notice that I could no longer attend a scheduled internal presentation because I had to speak to state regulators in the 9th of Circle of Hell during that time and was given no choice of times, though, and – all technicalities aside – I think I’m having a nervous breakdown.

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Cheez Whiz for Brains

*CW: oblique references to intense subject matter, but without details.

brain-jello
In the original source, this was suggested as a Halloween horror dinner prop. Seems appropriate…

The human brain – especially the ADHD brain – has a way of latching on to the most inane of details. It dutifully encodes what the original package writing was on the box of records carried into the courtroom itself. It encodes the original sticker price of the random hardcopy book purchased in a vain attempt at “distraction” from it all.

It immediately calls to mind the two right shoes accidentally brought by the Partner instead of one complete set, necessitating a last minute scramble to find a replacement pair, and it recites the same lame attempts at humor that at least he was doubly in the right instead of the wrong without missing a beat.

It recalls every minute of the three-hour wait for pizza the night before – really, does the whole of the 9th Circle of Hell have to order pizza at the same time on the same random night? – and the raiding of the hotel’s snack bar during the wait. It readily embraces the fact that cheez whiz is a thing in the Midwest and that it might actually be a dysautonomiac’s perfect food. (Four crackers with cheez whiz can literally top salt pills for raw salt content. The brain won’t soon forget that…)

The human brain can also dutifully remember all the relevant facts of the situation that brought it to Hell and where the injustices lie. It can never forget them, in fact, as even in sleep it will remember the things it’s experienced these past few months. It can remember clever lines from our counsel – though only with the help of its owner’s honed skill of taking accurate notes even while feeling thoroughly numbed out or overwhelmed by the enormity of what this state permits in ignoring their own regulations and allowing things to get this bad. It can remember the specific beaded bracelet it directed its owner to chose for the day and why it chose it, and the flavor of the Gatorade it instructed the arms to raise up to the mouth to drink before it signaled that same mouth to open up and speak.

It can remember being told its owner did a good job in her testimony afterward: that the raw anger she displayed (contained within court-appropriate voice and following proper protocols, of course) as she spit out the rights violations both in the original situation and in the posthoc cover-ups was probably more convincing than anything she specifically articulated. It can remember that it supposedly conveyed “wronged” in a tone that bald facts alone, sadly, could never hope to match, because facts don’t really matter in these situations. Appearances matter far more.

The human brain can even remember that it did actually prevail that day. (Though, it would immediately remember not to get too congratulatory about one “victory.” It remembers this is a complex situation, and there is more yet to address before all is said and done. And, sadly, it remembers from long experience that even if everything were to go “doubly right” the entire rest of the way, it would still only be addressing prior wrongs. It wouldn’t be making a dent in the larger system that sustains these kinds of wrongs with immutable indifference and laxity. The human brain can remember what it is like to know it has only put another band-aid on a gaping wound.)

The human brain can remember many things, and it can imagine and plan for so many more. It’s funny, then, that it can’t seem to be bothered to allow its owner to truly remember much of her actual testimony itself, even while it remembers the preparation and the debriefing. Oh, and her dinner.

The human brain, it turns out, is equally great at filtering out as it is at taking in. It has a mind of its own, and it wields that power with the conviction that it knows better than its owner what she is strong enough to remember and what is better for it to quietly disperse into vague impressions.

Oh, an owner might argue that her own testimony should rank a bit higher in the priority list than cold pizza, but that’s the frustrating thing about the human brain’s algorithm. Cold pizza? Frustrating, yes, but it’s logical and vaguely predictable and fits within an ordered world. The brain likes safe, predictable worlds, even when they are predictably frustrating. That can make the cut.

Testifying? Well, that requires not just reliving all the fear and horror that went into experiencing the situation originally, but adding some new on top, because “justice” is not a word the brain ever associated with the 9th Circle of Hell. Testifying is confronting the illogical, the inexplicable and the disordered. Testifying is confronting that the world isn’t safe, and the logical brain thinks it is most logical to shield its owner from that world as best it can.

The human brain is, admittedly, a bit confused as to why there isn’t a surgeon general’s warning “for those with diagnosed autonomic nervous system dysfunction only” printed on every can of cheez whiz, but it can choose to remember cheez whiz without needing to understand or, frankly care why. It can’t choose to let its owner remember her testimony without risking her caring too much – or worse, numbing to the point of not caring and risking becoming no better than those she fights against. So, rather than trust her coping skills it filters those bits right out. It files such things away in a special category called “trauma memories” for her own protection.

The human brain is the most biologically intricate piece of machinery on the planet, and all those millions of years of evolution have led it to an algorithmically optimal solution for handling trauma. Until the world becomes a much safer and saner place than it is today, the safest bet, it believes, is to offer its owner only cheez whiz for brains.